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Diagnosis and the future
I got my diagnosis on Wednesday. I waited to "officially" share on here until I better understood it myself. I have Minimal Change Disease, (MCD) which was what the Nephrologist (kidney doctor) thought it was going to be. It's an autoimmune disorder where the immune system attacks the filters in your kidneys. If it goes untreated for too long it can mutate into FSGS which is more severe but extremely similiar.
I will have MCD my whole life, but it can go in and out of remission. My doctor want to "wait and see" for a month I guess it can go into remission all on it's own. After that I have my options of a steriod (prednisone) or an immune-suppressant, azathioprine. The immune-suppressant can cause cancer and infertility so I'm really hoping the prednisone will work! Prednisone I guess makes you gain weight like crazy and can cause MAJOR mood swings. But of the two choices I'd rather be a chunky lunatic. lol!
I'm not going to bore you all with details but I did want to thank you all for your T&P. This turned out to be best case senario, and hopefully it will go into remission soon. This first year of marriage has been kind of crazy. DH was diagnosed last month with an autoimmune disorder called Sacroidosis. It hasn't affected him yet and hopefully never will. But his immune system is trying to fix organs that aren't broken and it can cause decreased organ function. DH and I are staying positive. We keep joking that our kids should be perfect, my immune system is attacking my organs and his is over fixing his.
Also, I did find a message board for people with my disorder. Don't worry though, you ladies are still my favorite!!
Re: Diagnosis and the future
I'm really glad you got some answers and it was the best case scenario. Still sending t&p that you will go into remission. From experience, prednisone makes you a crazy person. My mom was on it when I was a kid, she has crohns disease, and my sister and I called it the "mean medicine". But, it did help her feel a lot better. And, no side effects of cancer or IF, so that is a positive too
Thank you all for your kind words! Looks like I'm going to start the prednisone this week. I can't handle feeling like crap all the time. I'll be on it for several months so hopefully I'll get lucky and not have side effects.
I'm trying a low sodium diet to help reduce swelling and I'm down to less than I weighed at my wedding. I'm wearing clothes I wore in high school!!! It's insane!! I've made a promise to myself to dress in clothes that make me feel good on my swell free days. I never know when I'm going to balloon up, so I think it's important to feel good about myself whenever I can. Watching my body go up and down (visually and on the scale) dramatically all the time gets extremely frustrating and defeating.