Family Matters
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Eating disorder in the family

My sister has suffered from a host of mental and physical health problems, and it's been an ongoing struggle to know what the root of her problems is, or how to help. I've tried to help in the past, and it blew up in my face, so I backed off in the past few years. However, I now see my sister really struggling, and it feels so wrong not to do something. She has been in treatment for anorexia before, but since then she denies having an eating disorder. However, she now looks painfully thin (I'm sure she's under 100 lbs), her hair is falling out, she hasn't worked in over two years, and is constantly in pain all over her body. She always refuses help especially if it's anything to do with food or her mental health. She believes all her problems are a muscular problem. But then why would she not be able to eat and lose her hair? I guess I'm just feeling helpless, and wondering if anyone else knows someone with similar problems, and if this could all be linked to an eating disorder? Anything I try to say or do just makes her cut off contact, but it's hard to see her look so ill and do nothing. Thanks for reading.

Re: Eating disorder in the family

  • If she says it isn't an eating disorder, than what does she say it is?

    Most people who have weight loss and hair falling out would be at the doc STAT trying to find a cause and to get back to a healthy state. If she is not regularly seeing a doctor and is not under any treatment, than it's most likely an eating disorder. Otherwise, she would be seeing a health care professional for a specific treatment for her disease/illness or trying to ascertain the causes of her body's poor condition.

    From what I have read, eating disorders have to do with body image and control. The person suffering fixates on their body or a part of it - that is literally all they are capable of seeing when they look in a mirror.

    Life is hard. And, some people cannot manage it mentally very well, so they develop coping mechanisms to get through by providing themselves with something they can totally control. The amount of calories a person consumes is totally within her control. Also, an eating disorder is a sickening cycle. She probably hates starving herself and she probably hates herself for starving her body, but she continues in the cycle because she thinks in her head, "I will stop doing this and hating myself when I attain XYZ weight or XYZ about my body." But, she won't.

    As with all other addictions - and this is an addiction of a kind, the person has to want to get help.

    Trying searching for eating disorder family support networks online. They probably have helpful tips for what to say/do and not say/do.

  • Is it at all possible that she is has a severe undiagnosed form of hyperthyroidism...? That could account for the weight loss and hair loss.
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  • Time for an intervention?
  • It sounds like she is working up to blaming this on a fibromyalgia diagnosis. That would not explain her weight/hair loss. (Not typically anyway)

    I have a feeling her pain is either from a mental disorder and/or from her body breaking down muscle for fuel. Not getting enough electrolytes will also lend to pain or muscle aches. This all sounds like a lack of nutrition.

    Possibly time for an intervention if you can orchestrate one. Is there anyone you can get information from and join forces with? That may help with your cause. 

    If not, try to talk to her. I'm sure there are many on line resources that can give you tips. If none of these things help, you need to realize you've done all you can and you need to forgive yourself for not being able to fix her. In the long run, you can't do it for her. 

    For those of us who love those who are self destructive, we have to accept we've done the best we can. Good luck to you and your sister. 
  • Thanks everyone! I've asked her about fibromyalgia and thyroid, and she just won't pursue going to a doctor. It's frustrating because she gets mad when people worry about her or ask questions, but then she does share info (she's the one who told me her hair was falling out) that any normal person would worry about. I asked her to go to the doctor and she just refuses. She's had many different explanations for her pain and not being able to work, but the latest is that it's a muscular problem. But I know that she hasn't been diagnosed by a doctor, and a doctor actually refused to sign off on any diagnosis so she could get disability benefits. My family had an intervention to get her into treatment a few years ago, but when she got out, she cut us all off. She and I only started talking again recently. I know there isn't much I can do, but I thought I'd see if someone else out there has a loved one with a similar issue, and what they tried. I'll just feel terrible if something happens, and it feels like something has to give soon. I wish you could force someone to go to the hospital!!
  • And Sillygirl45, thanks for the information about fibromyalgia and electrolytes - I didn't know electrolyte imbalance could cause pain, but I bet that's what is happening. Eating disorders are so destructive, it's hard to believe. Seeing her struggle for years has really made me understand why so few people recover from eating disorders. It's just so sad. The information helps though, I've found it hard to find information on the long-term physical effects.
  • I'm sorry you're going through this.  No, there isn't much you can do.  I went through an eating disorder myself from 13 till 22 and was only able to work through it after I hit rock bottom.  I didn't have any relatives who were proactive like you though... they all ignored the problem... but if they had done something I would have reacted the exact same way, by cutting everybody out of my life.  It's a very confusing existence.  I was 103 pounds at 5'9 and saw rolls of fat on my upper arms and stomach. 

    If she's anything like I was she feels an unbelievable power the longer she goes without eating, and there is a voice in her head that is telling her constant horrible lies about her body, personality and self worth.  She won't give it up until she finds something that's more important.

    Whenever I come across someone looking for more information I point them to this website:

    http://www.something-fishy.org/

    I haven't been there for several years, but it used to be great!  I hope it offers you some guidance.

     

    TTC #1 since 10/2006 Lap shows stage 1 Endo
  • @sillygirlio - thank you for sharing your experience. I'm really happy to hear that you've been able to work through your eating disorder. That gives me hope for my sister too. What I find the hardest is not being able to talk about it, and instead hearing her talk about all these other physical problems that she blames for her weight loss. It sucks to be so helpless and to not know what or when her rock bottom will be. To me, it seems like she's been at rock bottom for at least a year, but I guess not. I hate to think what rock bottom will be. I'll definitely check out that website, thanks! At least I can be informed, even if there's nothing else I can do.
  • I am so sorry for you. @sillygirlio had great advice. I'm wondering how things have progressed? To be honest, many of us have had these awful dark times. I hope things have improved :)
  • Hi @Sillygirl45, no progress yet, which is a huge part of the problem. My sister says she gives herself until the end of this month to be "better", but I know she won't be, and she doesn't have a plan of action for if she's not better. (She has set many, many deadlines like this.) I feel more time pressure because right now I can actually help her a little (if she'd let me), but I'm having my second child in a couple of months, and I know I'll be out of commission for a while. So I really wish she'd let me do something before I become a sleepless, breastfeeding zombie! (I love babies, but I'm realistic about how useful I am when I have a newborn.) :). Thanks for asking, though! It's nice to hear.
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