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Answers, of sorts
Everything came back absolutely normal.
Viamin D? Good. Liver Function? Good. A host of other things that I don't now remember? Good.
Two separate radiologists (one here, one at Children's) have said that his x-rays show no markers for any bone disease, including rickets. Only the x-ray of his skull shows any abnormalities (I'm guessing that's the soft spot) but the abnormalities don't line up with anything, diagnosis-wise.
He said that until now they had been assuming that this high Alkaline Phosphatase level was coming from the bone, given his lack of growth and his soft spot, but now they're not sure. Apparently there's a few places it could come from, including his liver, kidneys and his intestines. So it looks like he has to go to Children's to do a test that will determine where, exactly, this mineral is leaking from. They only do the test at Children's, so there's no chance of doing it here. However, he said that since everything looks so healthy that this test might not be done immediately. Now that we know it's not a serious bone disease and that his liver and kidney functions look fine, he's not a "rush" patient anymore. He's speaking with an endocrinologist at Children's (another doctor at Children's, I think the first doctor was an orthopedic specialist?) to determine when he wants to do this test. But the pediatrician told me that he thinks it possible that the endocrinologist will just want the situation monitored here for now, with regular testing, to make sure nothing is getting worse.
So I guess that's where we're at right now. No real answers, but it sounds like there's not too much to be concerned about (the pediatrician sounded a lot more relaxed today than he has during any other conversation, he sounded really concerned that it could be something bad before). It sounds like they've ruled out anything really serious, which was the big concern. We still have to go in for the brain ultrasound, hopefully that goes well.
Here's a site that outlines what we're going through: http://www.nlm.nih.gov/medlineplus/ency/article/003497.htm
They say that the normal "high" level in children, found during growth spurts, is 500- Ethan's was 4081. The pediatrician said that a normal rating in children not in a growth spurt (although how do you predict growth spurts, I wonder? Maybe Ethan is going to go through a wicked one) is about 150.
So thank you all for listening to me rant over the past few days- it's definitely been rough on all of us. You guys are great. Hopefully I won't have cause for any more dramatic posts 
Re: Answers, of sorts
Well - I'm glad that he doesn't have a major bone problem - but I'm so sorry that you STILL don't have any answers.
(((HUGS)))
That's a bit of a mixed bag isn't it?
The good news is everyone is more relaxed which means you guys can be too. I'm glad there is nothing urgent going on.
I do hope that answers come for you! It seems like you have a great team of doctors now and I'm sure they will pull through for you.
We're always here to listen - no need to thank us!
wow, great to hear that lots of the major things came back good.... but still questions... thats gotta be a tad frustrating still.
still sending my positive health vibes, and hugs your way.
Wow that is a relief that the bone diseases are ruled out - that doctor had you really worried (sounds like he was quite worried himself).
Frustrating you still don't really know what's going on, but it must be nice to have some of the major possibilities ruled out.
And post away when you can, I was worried about the two of you and hoping you'd get some answers soon.