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wwyd
So I'm sure most of you know what's going on with our son...
A couple weeks ago we noticed that my husband's cousin has been talking a lot about his kid having surgery. His son is only four months older than our son. He didn't mention specifics and since my husband doesn't talk to this cousin a lot we didn't pry (one thing that has driven us crazy is the constant calls for status updates from people we don't talk to often who have heard through the grapevine that we're going through stuff and demand constant updates. My husband's family is not close and he rarely speaks with any of them, so he felt odd calling this guy up to sympathize when they don't really speak otherwise). However, this cousin continued to post more and more stuff about his son being sick and "in pain" without ever giving a reason why, even though many other people posted questions on his wall. The questions were never responded to. We took this as another hint not to intrude (although we did wonder why he would keep posting stuff if he didn't want to talk about it).
However, last week this cousin posted pictures of his son in hospital, and both of the kid's wrists were bandaged. This made me wonder what exactly is wrong with this kid, as many of the bone conditions we are testing Ethan for are genetic, familial diseases, many of which would require corrective surgery. Espcially since they wanted x-rays of my son's wrists to look for markers of disease... seems like the wrists are a hot-spot for bone diseases? I'm thinking that there aren't that many things that could be operated on in the wrist (but I'm sure there's some non-bone stuff, like tendons or whatnot that might need to be fixed) but really, it seems like an odd coincidence.
So my husband tried calling them and found that they're unlisted. He contacted the cousin on Facebook and expressed sympathy for the son, and told him that we're going through health concerns as well. He also mentioned that we don't yet have a real diagnosis for our son but that he does appear to have a bone disorder. He politely asked for more information relating to the kid.
No response. And the cousin has been on Facebook many times since then.
I don't really know what to do- on the one hand, if this kid does have a related disease, I want to know about it and I feel like we deserve to know about it, if it is a hereditary disease and we're going through the same thing. On the other hand, I feel like they deserve their privacy (although I don't know why they continue to post weird comments and surgery pics on Facebook if they don't want to talk about it) and really, Ethan and this kid are only second cousins so that's kind of far, genetically speaking, to share the same disease...?
So, WWYD? Would you continue to try to find out what is wrong with the cousin (maybe through other sources), or give it up, and assume it's unrelated?
Re: wwyd
Baby #2: Surprise BFP 9.19.12, EDD 5.24.13, natural m/c 10.19.13 at 9w
Baby #2: Surprise BFP 9.19.12, EDD 5.24.13, natural m/c 10.19.13 at 9w
I would try to find their phone number, an aunt or uncle? Parents? Someone has to know how to reach them. Your message could be lost in a pile of messages in their inbox. They may pop on to update but not go back and see what was said or have time to sort through their mail.
Or maybe someone closer to them can tell you what is going on.
The other option is to tell your doctor that you don't have the details, but there is a cousin who had wrist surgery, is there something they could test for that they normally wouldn't?
I wish I had a button on my computer that types "What kmap Said". I'd use it *often*.