April 2008 Weddings
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Celiac Disease

    So I went to the GI doctor yesterday to talk about my options in terms of medication for my irritable bowl syndrome since the medication i am on you can't get pregnant on because it will cause birth defects.

   He asked me if i was ever test for Celiac disease because i seem to have a lot of the symptoms and i told him that i was never tested. He ordered a bunch of blood work to see if i have any traces of it in my blood and if i do then we will do an endoscopy. I don't go back to the doctor until April 12th. I am a little worried about having it. it is not life threatening but i would have to completely change my eating/diet.

  Does anyone have any experience with it?
 

Re: Celiac Disease

  • I once stopped eating white sugar and white flour for several months so it's similar to that.  You get used to it really and learn to bring things if you eat out or try and figure out ways to eat out.  I actually like the sprouted grain bread better than regular wheat bread anyway :) 
    Visit The Nest! BabyFruit Ticker married 4/19/2008
  • It's gotten much easier to lead a "normal" life.  I see tons of Gluten Free products now and they're really not bad.

    It will become a way of life but you'll feel so much better that it will be worth it.  There are some girls on the Pets board that have it - I think MelisaP is one of them if you want to page her.

    BabyFruit Ticker
  • One of my friends girlfriends had this and I remember her having to be very careful about what she ate all the time. It was especially hard to go out to dinner with her because she couldn't check the labels of the foods...over time she figured out what she could and couldn't eat, but it is hard.

    Sometimes she would eat products with gluten in it and it would make her really sick to her stomach.

  • My ex boss had it, and strangely it was called to everyone's attention at least once a week. She seemed to manage fine after some education, but like Marissa said, there's tons of gluten-free products out there, it makes things a little easier.

    Once it's brought to your attention, you'll be surprised how often you see gluten-free after that.

  • I can definitely offer up some recipes and meal ideas. We can talk about it over some gluten free goodies on Thursday. :-)

  • I have had several students with it- one of whom opened a gluten-free bakery and cafe! (Well, her parents did- but it is very successful). I had one child travel to Russia with me a few years ago with Celiac- it was a challenge, as it isn't really understood outside of Western Europe/US. But there are TONS of things you can eat still- it is just a lifestyle change. 

     Good luck! 

  • The good thing is that there is a lot more attention on this disease so there are more options.  Not only that, but you will feel sooo much better. Elizabeth from The View has this. You may want to google her. I think she wrote a book about it.
  • I am going through the same thing as you right now with the exeption being they think I may have the beginnings of Crohn's disease. I had an endoscopy last week and the results came back negative for cancer, bacteria, and Celiac. But they did find a 5x5 inch area that looked like raw meat. They put me on a heartburn medication to see if maybe my stomach was producing too much acid and that was causing the blood and pain. I feel better, but I have also been taking care to eat more bland type foods which sucks because Im a foodie. My follow up is next week to talk about other options.

    Good luck.

  • Hi,  

    I have Celiac disease, I've been diagnosed for over two years and it was a huge change in my life but WORTH every minute!  The improvement in my health is amazing and it's really nice not having the crazy GI symptoms anymore.  Transitioning to eating gluten free means you are 100% aware of everything you eat, but once you get a grasp on what has gluten and what doesn't it isn't hard.  In the last two years I've noticed a big increase in the number of gluten free foods available, restaurants that are able to accommodate and more companies are labeling better.   

     Feel free to contact me if you have questions, need resources, or get a positive diagnosis and want to talk.   

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