Austin Nesties
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Cystic Fibrosis??? And dust please...
My 3 year old nephew (my step sister's only child) was diagnosed with Cystic Fibrosis today. I used to volunteer at the Texas Children's Hospital so I had a little knowledge of it and today have since googled about it, but does anyone have any experience with this? In the last 20 years they've made a big change in life expectancy (now in the 20s-30s whereas before children didn't live past middle school) so my hope is for future progress in treatments of course. They live in Dallas so I'm certain their pediatrician will get them hooked up with the CF care center up there and I also hear it's very expensive...I guess I'm venting and just wondering if anyone's had any experience with this? Any dust/prayers sent their way would be great.
Re: Cystic Fibrosis??? And dust please...
I'm so sorry about the diagnosis. Sending major dust.
I had 2 uncles (who I never met) die of cystic. It's terrible but you are 100% right that life expectancy and coping treatments have improved dramatically. There are a lot of great websites with good info out there-just let me know if you want me to pass them on.
Hugs
I have a friend who was diagnosed with CF as an infant and is now a happily married 24 year old who is looking forward to starting a family within the next few years. It's not an easy road, but there is definitely plenty of hope out there.
Big hugs to you and your sweet nephew, and plenty of thoughts and prayers as well.
Sometimes I pin stuff