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Our Update-long
Im extremely hesistant to post this but Elizabeth encouraged me to in order to reach out to you ladies. Nolan had a physical therapy evaluation on Tuesday. Our worst fears were confirmed. Just to back track for a moment, at his four month appt. I expressed concerns about Nolan holding his head up. He will not do it in the bumbo or jumper only if you carry him. The doctor was also concerned. Jump ahead to our PT appt, the PT said he has Severe Plagiocephly and Torticollis both right sided.
Plagiocephly, basically means he has a flat spot on the back right side of his head. Most likely due to positioning from the Tort and also because of the way he was stuck in the birth canal. Now up until we put him in the bumbo we had not noticed anything. He does everything ahead or on time as far as development. Then the PT brought out the helmet, and i literally lost it in the evaluation. I could not stop crying. He will receive PT for the Tort about once every week or every other week. We start next week.
Along with that i have to do physical therapy at home which has become pure chaos. If i thought i was busy before just add PT on top of it. When the appt. was over i had to call nick to pick us up because i could not drive and especially could not handle going to the plaster molding for the helmet alone. The PT said the helmet must be worn for 23 hours a day for 3-4 months. The Orthotist said its typically 3-6 months but the older babies like 9 or 10 months are the ones who go 6 months. This is the earliest age a baby can wear a helmet at so im glad its early.
Once they slid on the nylon piece before putting the plaster on i just couldnt stand to see only his eyes, nose and mouth. It was too much for me. My biggest problem with the whole situation is I do not want him to be judged as mentally impaired or developmentally slow. I mean the helmet is going to make his head round adn that is the only purpose for the helmet. Nick doesnt understand and said the 4 months will fly by but i just dont want him to be called "special" or anything of that nature because of the helmet. I am not going to announce this on facebook or anything like that. This is extremely personal and very hard for me. I have found an online support group and Kristi has given me a name of someone else who just went through this. That is why i feel a little bit okay to talk about this.
Lastly, please dont think any differently of him 
. I keep thinking its just a cosmetic fix so he can wear athletic helmets in the future without having a problem. I do think more moms should be made aware of Plagiocephly and also Tort. All of our doctors have told us the "back to sleep" program is the other culprit. Since they push moms to have babies only on their back it causes this problem, but with the stomach you run the risk of SIDS. I feel like i just cant win. I have still been having moments where i completely lose it and cry purely because I dont want him to be made fun of. His helmet comes in two weeks and along with the PT we have to go to the Orthotist every 2 weeks to get it adjusted as he grows. Give all of your sweet babies & kids or even furbabies hugs because i really could use a giant one!!
Re: Our Update-long
Oh Stacy! We would NEVER think less of Nolan OR of you and Nick for this! Totally not your fault and it's going to be ok. Nolan is a beautiful healthy baby with something that is fixable and, because you are so aware and such a good mom, you were on top of it and it's going to be fixed! I know the next few months will be hard, but Nolan is going to be fine.
But he is special. Special in a good way. Because he's your baby and one of the May 2007 babies.
Well said Mandy!
Very well said Mandy! And I especially agree with the part that if you weren't such a good mom and aware of what was going on it might not have been caught right away. I've known a few mom's that had to go through this and they try to make the best of it.
It will probably be really hard on you the first time you take Nolan out in public...but don't let that stop you! It's just curious people and I really hope people won't judge Nolan.
I'm happy to hear that it's something fixable and it was caught so early on! Give Nolan some kisses from his "aunties"
Stacy, thank you for sharing with us. And I hope that you know that we would never think differently of him.
I too am glad that you were bing as observant as you have been and the doctors caught this early.
If people stare, try to ignore it. At the very least you can educate some people about it if they ask.
Like everyone else said, the next four months will go by pretty fast and before you know it, this experience will be nothing but a far distant memory.
Stacy, you have the cutest little boy! That adorable little face can't be hidden by any helmet! I know you will still be getting the same smiles and laughs over the next four months from Nolan. I hope the time flies for you guys and this is just a minor blip in his otherwise healthy, happy life.
Sorry, this a little late - I'm a west coaster. You are probably in bed by now.
I'm wait late but I couldn't agree more w/ everyone else. You'll be in my T&P's and I'll pray that this next 4 months goes by fast & smooth sailing for you.
I'm so glad you shared with us. My mom's, bosses son had the exact same thing and now he is a happy,healthy three year old. The helmet worked pefectly, the same thing as Nolan, he had to wear it for a few months and now everything is resolved. Nolan is a perfect little boy and nothing is going to change that. Hugs to you, Nick and Nolan.