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Aerorea...how is your Dad?
Let us know....we're all thinking of you.
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Re: Aerorea...how is your Dad?
Aww, thanks so much for thinking of me & my family. It means a lot.
We drove down Saturday and spent the day with them. He came home from the hospital Friday night, so it was good to see him back at home. He is so very thin. It's like skin and bones. The good news is that he's starting to get a better appetite, so mom is giving him whatever he wants and not the diet versions of anything - whole milk, regular yogurt, etc. He will have a catheter until next week and he'll be going to the doctor's office every two days to have the fluid drained. I found out it is called a "Denver" and the fluid is coming from the liver damage. There was so much of it that it was going up into his lung cavity and making him cough and preventing him from eating properly. Nobody can say how long he's had the fluid or WTF they didn't see it any of the other upteen scans and tests that they had done. I'm just angry about that.
DH & I went out to eat so mom wouldn't have to prepare anything special for me for my diet and afterwards we visited some old friends that just got a beautiful new house. We spent the night at the Fairfield and went back over to my parents' on Sunday. I knew that dad was uncomfortable and if we weren't there, he'd be able to be more comfortable (undressed), so we left after lunch.
I talked to mom outside before we left and asked how often we should come down - once/month or every other month. I was so saddened when she answered once/month. The ride home was tough. I'm on edge and I just never know when I'm going to get "the call." There's no timeline - it could be a matter of months or years. Nobody has an answer. At times I'm ok and at others I'm an emotional wreck. I don't know how my mom keeps it all together. She has so much to deal with with her own health and now she is the pillar for my dad as well. She's amazing.
So that's it. It's a wait-and-see game. We're all hoping that getting this fluid under control will be the key to a good recovery for him. He's miserable, but truly wants to get better.
Wow....I'm glad to hear he's improving, but man, that's a lot of stress, for him and for everyone.
Again, if you ever need anything while you're in WR, you know how to get a hold of me. {{{{hugs}}}}