Hawaii Nesties
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
*Miniwheats*
Can I ask you a personal question about lupus?
My favourite teacher in high school had it, and hers manifested so that she regularly lost her voice, had sore joints and couldn't go out in the sun. I know they say lupus has tons of different symptoms - what are yours like? She also had TTC issues (she adopted a girl from China my last year from high school and won the Canadian Teacher of the Year award - just an amazing person) and it just got me thinking about it all...
Seriously, feel free not to answer if you're uncomfortable with the questions. That's the last thing I would want you to feel!
Re: *Miniwheats*
I'm not uncomfortable at all!
Yes, Lupus manifests itself differently in every person. That is why it is so hard to diagnose. For me, the biggest problems are chronic inflammation in my joints which causes immense pain and extreme fatigue. I also experience butterfly rashes (very common), hair loss, unexplained fever, sensitivity to sun and I have had one seizure as a result of the lupus. I also have been know to have lots of infections (In the 6 months before I was diagnosed, I had the mumps!, an ear, throat and chest infection, pneumonia, the flu, 2 yeast infections, a bladder infections and an eye infection. My immune system was so compromised that I couldn't fight anything off, it was horrible).
Lupus is an anti immune which means that your immune system attacks itself. It is difficult to become pregnant when your body is working so hard to fight against itself. Also, woman with Lupus have a higher rate of miscarriage and premature births. I am told that the reason for this is that the Lupus cells attack the placenta much like they attack your healthy cells.
It is not a nice thing to deal with and the only course of action is immune suppressors. The idea is that if you suppress the immune system, it will stop attacking itself but in return, you cannot fight off other illnesses. It is really a catch 22. It is frustrating as no new medication has been approved in over 40 years! There has been alot more attention that has been paid to Lupus in the last 2 years so I hope their will be some more research and maybe even a cure one day!
Anywho, thanks for asking! Hopefully, I provided some insight!
I really appreciate your response! It's one of those diseases that not many people seem to know about... and if I hadn't had that teacher, it probably never would have hit my radar.
That's insane that the meds are SO old and so damaging to the rest of your health. =( I can't believe nothing new has come on the radar in the last 40 years! Is that just in Canada or across North America?
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In North America! There is a bit more research being done lately though. In fact, Snoop Doggs daughter has Lupus and she is on a trial drug down in California. Snoop is trying to get that drug approved in the States as it seems to be working for her. It helps to have someone famous bringing awareness to it! lol.... weird that it is Snoop Dogg though.....