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Ryley Update
Well, they've confirmed it, he has officially relapsed. The game plan right now is an intense round of chemo to get the Leukemia under control and then a bone marrow transplant.
They're going to be testing Tim, Shannon and the girls to see if they're a match. If they're not, then they start looking on the national registries.
While you can't direct who your bone marrow would go to, If you're interesting in joining the bone marrow registry, here are some links for information:
Canada: One Match
USA: Be The Match
UK/Britain: British Bone Marrow Registry
Becoming a bone marrow donour is a very personal decision and I'm not trying to push anyone into it. I'm more than willing to do the legwork if anyone needs any other info.
While you might not get in the system in time to help out Ryles, you could very well save someone's life.
We'll just not tell H about this little fact, m'kay?
Re: Ryley Update
Alyson & Phil | Planning Bio | Married Bio!
Dates & Quinces Blog
This makes my heart hurt.
I'm going to find out if I can register, due to having a blood transfusion in November I'm not sure if I'm eligible right now, but I'm going to look into it for sure.
Baby #2: Surprise BFP 9.19.12, EDD 5.24.13, natural m/c 10.19.13 at 9w
Cecilia arrived 12 October 2012
I am so sorry to hear this, it makes me so sad. My T&P's will be with him and his family.
The Daily Nugget
Cycle 12, IUI #1 - 33m post wash 10/15/10 = BFN
Cycle 13, IUI #2 - 15m post wash 11/16/10 = BFP, missed m/c, D&C 1/3/11
Cycle 15 - 18, IUI #3-6 = BFN
Cycle 20, IUI #7 = BFP!, missed m/c 9/14, D&C
DE-IVF Aug. 2012: ER 8/30 11R, 7M, 4F; ET 9/4 returned 2
Beta 9/18 #1-820, #2-1699, #3-7124
10/1 1st u/s measuring right on track, 125 bpm
I'm so sorry that hear that. Lots of thoughts and prayers for Ryley.
TTC since October 2010 | BFP 12/29/11 | RRQ BORN 08/26/12
planned | married | blogged
Poor guy.Thoughts go out to his family I cannot imagine what they are going through.
I am on US registry for bone marrow. It is really easy test, they just take you blood. If you are potential match they do some more testing. If you are chosen for a person across the country then all you expenses are paid for that trip. I have been on it for 5 years now and I have never been called, but 2 people from BIG bone marrow drive they had in my hometown were chosen only one ended up being the match then needed.
BFP 5/2/11, missed m/c, D&C 6/13/11
BFP 12/8/11--Little Girl E Born 8/22/12
Now jumping domestically.
Well that was a crazy couple of years.
That's so sad. Poor little guy. T&P to Ryley and the whole family.
There's an organization called Be a Hero, Become a Donor. Their website is www.bahbad.org . It was founded by a high school classmate of mine who lost her son to a metabolic disorder, in spite of a cord blood transplant. And, my boss' daughter is now leukemia-free after a bone marrow transplant this year.
Donations are so important - blood, organs, tissue, etc.
Here's a youtube video of their story:
http://www.youtube.com/watch?v=jK4Q2aX753E
What makes it even more amazing is that her daughter donated a kidney to save the life of a child they met at the Ronald McDonald house while her son was being treated for his illness.