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xp: My Story - Long
Copied from my local board. The only person I have opened up to here is Laura. And I cannot thank her enough for being an amazing person and giving me the comfort of knowing I have support even from people I cannot receive a physical hug from, or have never met.
I know a couple of you have wondered, based on my Facebook status, what in the world is going on. I've never told people publicly what the deal is. Of course family, friends, and those on a need to know basis know, but other then that I've kept everything very hush hush. Now I'm at a point where I don't see why I should. So here I go.
6 years ago this January my mother was diagnosed with frontotemporal lobe dementia. She was only 53 when diagnosed. Feel free to google, but if you don't want the hassle, it is an early onset, accelerated form of Alzheimers. That is the easiest way I can explain it.
It has been an incredibly long journey these past 6 years. After DH and I got married this past Labor Day weekend, a week later my already barely speaking mother started going downhill rapidly. It's as though she knew she had to hold on to see us get married, and after that she could "let go".
As of Friday evening my mother has entered the final stage of her dementia, and at 58 years old is bed ridden. Unable to move further then rolling over, unable to speak, unable to feed herself, and having not a clue who I am. We (my father and I) are moving her from the assisted living facility we had to place her in in November to a nursing home to live out her final amount of time, however long that may be. We have no way of knowing if she will be around for a month, 6 months, or a year. Every day breaks my heart and I am unable to control the tears since they started on Sunday.
So that is why my status
updates on Facebook have been so sullen lately. I know it sounds cliche
but remember every day to tell the people you cherish how much you love them.
Because all I can do is tell my mom I love her and help make her
comfortable, until the long goodbye I've experienced for 6 years,
reaches it's final one.
Re: xp: My Story - Long
I know I've said it before, but:
My thoughts are with you and your family. Please feel free to lean on us as much as you can.
(((hugs)))
The Princess of Anything is Coming!
Had a dream I was queen.
Woke up. Still queen.
Datsyuks & Ferdy- We Go Together Like...
Married / The Cookaholic Wife
Blog
I'm trying really hard not to cry while reading all of this because I'm at work, but all the ladies are right...we're here for you whenever you need us. I lost my dad almost 10 years ago and I had to see him deteriorate over the course of several months and that was hard enough as it is so I cannot even begin to imagine what 6 years would be like. As hard as it is, try to find comfort in the time that you've had w/ each other, remember the good times, try not to dwell on the bad ones, and know that when her time comes she'll no longer be in pain or have problems, she'll be free and she'll be your guardian angel watching over you from Heaven.
You and your family are in my thoughts and prayers.
09.25.10
Shioban, I'm so sorry you have to go thru this. Thoughts and prayers are with you. I'm glad you chose to share w/ us, hopefully it will help to know we're all behind you and here for you.
IUI #1 10/12/11 (Bravelle + HCG + Prometrium & acupuncture) = 10/26 BFP! Beta #1=250, Beta #2= 615. 1st u/s 11/8.
My heart aches for what you and your family are going through. Hopefully you can take comfort in the fact that your mom is surrounded by so much love, she may not be able to acknowledge it, but I'm sure she is feeling it.
If there's anything I can do to help, please, please reach out. You've got a whole community here that is thinking of you and sending thoughts and prayers to you and your family.
I really don't think there is anything I can say.
I can't imagine what you're going through right now.
I really and truly hope that things can get better for you - by whatever means.
TTC since 2010
Me: 36, slightly elevated FSH. Everything else (hysterescopy, HSG, b/w) normal.
DH:30, with super sperm? >200mil post wash
BFP #1 - May 2011 - m/c @ 8weeks
IUI #1 - July 26 2012 - Femara = BFN
Suprise BFP Jan 15 2013. Hope this one sticks!
TTC since 08/2010
Anovulatory since at least 12/2010 (probably longer, unDx)
Dx PCOS 3/2012
SA 5/25/12--normal
June 2012--50mg clomid+TI--BFN
July 2012--50mg clomid+Ovidrel+TI--BFN, lining at 5mm
August 2012--5mg femara+Ovidrel+TI