Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
I need to talk/cry/vent here for a moment.
I have too many friends IRL and don't ever want to feel like I am giving up hope for Nick. Nick is our friends little boy with Alexander's Disease. It has been such a rollercoaster with him for the last month. He has been airlifted to Fargo's PICU 2 times, put on the ventilator 5 different times, including last night again. He has a mic-key button to help feed and give meds and he pulled that completely out of his intestines last night. Including the balloon to stop that from happening. He is gaining quite a bit of fluid on his brain again and they are now considering a shunt again. Plus will now have to do surgery to replace the mic-key.
But last night after all this happened, the Mom called me just to cry. She is giving up hope for Nick. SHe doesn't believe he will make it to his 3rd birthday next month. She feels that him pulling his tubes out, stopping breathing is his way of saying, "it hurts and I can't do this anymore Mommy." Which broke my heart. I am crying as I type this even.
Sometimes life is just so unfair. And I honestly have to say, as much as I do believe in God, this would test my faith if it were my child. It's good He is testing them, because I would fail.
Re: I need to talk/cry/vent here for a moment.