October 2008 Weddings
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Since it seems today is an update day...

I just wanted to post a bit of an update on what's going on with my family. 

My grandma is doing great.  She's progressing realy well at all her therapies and has seen real improvement with her speech and the use of her right side.  The staff thinks she will continue to progress.  Right now the plan is for her to move into an assisted living facility up here in NY so my mom could continue to help out.  Mom is the only one of her siblings that is retired.  Her two younger sisters still have young children, and my mom has missed not being able to see her as much in the recent years.  Also the assisted living facilities will most likely be less expensive and easier to get into up here compared to down in FL.

So now onto my cousin.  Well things aren't as good with her.  She has officially been diagnosed with Early Onset Schizophrenia.  It is a huge diagnosis, and is a little hard to digest.  She has been put onto anti psychotic meds to help with the symptoms and will now most likely have to start intensive therapy and monitoring of her meds.  It is somewhat rare that a diagnosis is made for this disorder, most case aren't diagnosed until at least age 13(even that is fairly early).  She is 12.  My aunt(aunt di) is terrified what this will mean for her (she was a social worker for years, so she has seen what this can do to families and children).  She knows that a lot of kids with this diagnosis end up having trouble in school and end up on drugs.  It certainly is not going to be an easy road.  My cousin was just discharged last night so we'll see how things go now that she is home

So now the plan for her family.  My family had a huge discussion Sat. night about my grandma, and about my aunt and her daughter and what is going to be best for everyone.  If you remember my grandma had been living with my aunt and cousins.  So my Aunt(Di) has decided that it is going to be best for her to move up to Nashville with my other aunt(Joanne).  Joanne then can provide her with a bit more support, whether it be watching her yongest while they are at Dr. appointments, or picking up from school or whatever.  This will also hopefully allow Di to be able to finally get a job to better help support her family.  Also with my grandma not living with them, they can't rely on her income anymore.  This whole plan though is dependent upon my aunt's exH giving his approval to the move.  He only has custody a weekend a month or so, and hopefully he'll see it as giving his daughters a better life , and lets face it he might pay less in child support since my aunt will (hopefully) have a job. 

So that's the update/plan.  My mom comes home from FL tonight and starts the search for an assisted living home this week.  Hopefully she can find one fairly easy and they can work out how they are going to get my grandma up here from FL. 

Thanks so much for everyone's kind words in the past few weeks.  It has certainly been a bit of a rollercoaster with everything going on.  I will keep updating with new stuff as things arise.

Re: Since it seems today is an update day...

  • I'm glad your grandma is doing better.  I hope she continues to improve.

    So sorry to hear about your cousin.  I'm sure that's a devastating diagnosis for your whole family.  Hopefully, her dad will ok the move.

    I will continue to keep you all in my prayers.

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  • imagePlumCallaLily:

    I'm glad your grandma is doing better.  I hope she continues to improve.

    So sorry to hear about your cousin.  I'm sure that's a devastating diagnosis for your whole family.  Hopefully, her dad will ok the move.

    I will continue to keep you all in my prayers.

    All of this.  And I hope the early diagnosis means that your cousin will get the medication/support she needs to live a healthy life!  T&P to you all.

  • Oh I am so sorry to hear about your niece's diagnosis. I have/had a tremendous amount of mental illness on one side of my family. My father was diagnosed with schizophrenia but that was after my mothers death, I found his journal once and it was incredibly scary to read.

     I think your family sounds like they are being extremely pro-active. Many t&p's their way, and yay for grandma.

     

     

  • Glad your grandmother is showing great improvement and will be making the transition to assisted living closer to your mom.

    Glad to hear they were able do diagnose your cousin.  many vibes that starting this young and with the medications she will be able to keep it under control and have a successful life.

    Sounds like everyone is working together to try to be accomodating to everyone's needs.

    T&Ps for continued improvements for your grandmother and cousin.
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  • Wow, it sounds like you all have a lot going on.  Hopefully your mom can get your grandmother up here quickly and that will allow your aunt to focus on your niece.  I hope an early diagnosis means better treatment.

    Lots of T&P to you.

  • I'm glad to hear your grandma is doing better. I'm also glad your cousin got a diagnosis, even if it is not what any of you had hoped. While schizophrenia can be very scary, it can also be managed with proper care. My BIL was diagnosed while he was in college. He is now almost 39 and is a functioning member of society. No he does not have a typical life, but he goes to work everyday, goes to the gym, goes out with my ILs, goes on vacations, etc. To me it is all about the care given. My ILs decided to keep him home to endure he was always on his meds. There have been some drug issues, but I see it as self-medication and with awareness you can know it is going on. And yes, he is "different" but to me he is a success because he works. I could go on, but this is already a novel. If you want to know more don't be afraid to ask me. Your cousin sounds like she has a mom who really wants the best for her and will do anything to ensure that. Keep us posted.
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  • Wow. Glad your grandma is doing better. It sounds like the early diagnosis could mean really good things for your cousin. It sounds like your aunt really knows her stuff, so your cousin may turn out a lot better than if she were in a situation where things went unnoticed/undiagnosed. Hopefully her exH will come around to her moving.

    Your family will continue to be in my prayers.

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  • imageMitzzi23:
    I'm glad to hear your grandma is doing better. I'm also glad your cousin got a diagnosis, even if it is not what any of you had hoped. While schizophrenia can be very scary, it can also be managed with proper care. My BIL was diagnosed while he was in college. He is now almost 39 and is a functioning member of society. No he does not have a typical life, but he goes to work everyday, goes to the gym, goes out with my ILs, goes on vacations, etc. To me it is all about the care given. My ILs decided to keep him home to endure he was always on his meds. There have been some drug issues, but I see it as self-medication and with awareness you can know it is going on. And yes, he is "different" but to me he is a success because he works. I could go on, but this is already a novel. If you want to know more don't be afraid to ask me. Your cousin sounds like she has a mom who really wants the best for her and will do anything to ensure that. Keep us posted.

    Thanks!  I def. may touch base with you as things go on.  I'm sure they will get a second opinion in TN if they do move there.  Since she is so young, I'm sure it can be hard to diagnose.  We do have a distant cousin who's adopted son has schizophrenia so i'm sure my aunt will get in touch with him.  The hard part is that from what i've read the early onset can be more severe than the normal cases that are diagnosed during ages 18-25(typical time for diagnosis).  I guess only time will tell how things turn out.

  • Such a heartbreaking story about your cousin.  I am so sorry to hear this!
  • So glad your grandmother is improving. I'm very sorry to hear about your cousin but at least she's finally getting the help she needs.
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  • I'm glad to hear that your grandma is doing better.  I'm sorry that your cousin got such a difficult diagnosis.  I hope that they are able to get meds figured out and she feels better soon.
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  • Glad to hear about your grandma!

    At least now that your cousin has been diagnosed, they can begin helping her. It must be incredibly scary and sad for the whole family

     Continued T&P's and hugs.

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  • Glad to hear your Grandmother is doing well.  It sounds as though thinks will get better for your cousin since they caught it early.  Continue to sending you lots and T and P's! 

  • imagePlumCallaLily:

    I'm glad your grandma is doing better.  I hope she continues to improve.

    So sorry to hear about your cousin.  I'm sure that's a devastating diagnosis for your whole family.  Hopefully, her dad will ok the move.

    I will continue to keep you all in my prayers.

    Stacey said it for me. I really do hope her dad will see what is best for her and allow the move. 

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  • I am glad to hear that your grandmother is doing better.

    I hate that diagnosis for your cousin. That has to be really harsh but I hope that all the new adjustments can work out for their family. 

    Thoughts and prayers are still going to your family. 

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  • what a devastating diagnosis about your cousin.  I really hope they get here into a good therapy program and that she sticks with her meds-its really the only real way to keep symptoms at bay.  I've worked with schizophrenic individuals in nursing school and it really is heart breaking what they do through.
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