Maine Nesties
mesa81
member
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
MIT
A friend of a friend's newborn was diagnosed with CF. I don't know many details but I was wondering what were good resources for them to connect with at this time. I know of a few but I wanted to check with you to see what you'd recommend. Thanks!
Re: MIT
I'm sorry to hear this about your friend's baby. There are a couple of great communities that provide great support, although I'm sure they can also be scary for a parent of a child with CF because, unfortunately, we do have member who get really sick and pass away
There are some great new drugs coming down the pipeline that are giving a lot of us hope, though!
Here are the forums:
cysticfibrosis.com
c2chat
They probably know about the CF Foundation's website, CFF.org - it's a great resource.
Here is a very uplifting blog post about the up and coming drugs.
I also have links to lots of CF blogs in my blog (and those blogs have links to other CF blogs).