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anyone have endometriosis? long freakout
Hey girls. Last week's UTI pains got worse over the weekend, and I ended up in the ER again. They ran (another) CAT scan, did a pelvic ultrasound, and did a TV sonogram. Most tests were inconclusive, but the pain was VERY real. I was given a total of 10mg of morphine, and 5mg of toradol, then 2 vicuprofen when I was discharged.. and I was STILL in pain, although I was flying so high I didn't care. Anytime a doctor touched my lower right abdomen, I screamed and started crying. One doctor held up my right foot and hit the bottom of it which sent shooting pains up to my stomach that hurt so much I didn't stop sobbing for 20 minutes. I saw the top doctor, the leading gyno, and the head surgeon that night, and the only thing they could figure out was the possibility of endometriosis. A doctor 10 years ago told me she suspected it, but I never followed through since many of my symptoms went away after I started BC. Yesterday I saw a new gyno, and went for another TV and ultrasound, and they were stumpted as well, and said the same thing "it could only be endometriosis" I'm still in pain, and the vicuprofen only does so much. I've missed 3 days of work, and wondering if I can even go in tomorrow. The doctors told me the only way they can be 100% sure is if they do exploratory surgery.. because if I do have it, it's hidden behind something that can't be seen in the tests they've already ran.
I've been reading up on what this exactly is, and I'm freaking the f@#$ out. Have any of you ladies been diagnosed with this? Did they need to do surgery to find or fix it? Is it really going to make having a child even more difficult than I'm already anticipating? Everything says I shouldn't put it off, since it gets worse the longer it goes on.. and I already don't know how long I've had it.
Re: anyone have endometriosis? long freakout
I don't have it, but my MIL has it. She had four children, but did have a surgery after #2. It helped with the pain tremendously and in conceiving #3.
My best friend has it and got pregnant while on the pill. She had to take a lot of pain killers for her cramps during h.s. but finding the right birth control helped even some of that out and they don't seem as bad anymore.
My coworker has it and has two children, and had no trouble conceiving.
I know there are women out there who have had trouble TTC but some who have not, I think it depends on how bad it is and if they need surgery...I think it's one of those things like PCOS (which I have) that you could have very little symptoms or problems to absolutely everything and you won't know until you start TTC or until a doctor runs more tests.
I'm sorry.
For the pain and the diagnosis...but I do want to give you hope, those are just the women I know personally who have had it, I have heard lots of stories of other women who have it and didn't have a problem TTC either! There is hope.
My doctors have suspected that I have it and have wanted to do exploratory however I keep pushing it aside because i'm so tired of doctors from the other problems I have had the last year plus. My mom did have it though and she had to have surgery and they ended up removing all of the scar tissue and she then had my sister and I with a miscarriage inbetween us. I have been told that pregnancy helps endometriosis but that won't be my solution.
I have never heard of that much pain though inbetween cycles... I only have the extreme pain when I am on my period and have very very heavy bleeding and clotting.
What are you freaking out about? The exploratory surgery? It is just a laproscopic surgery that goes through the belly button... I mean it isn't fun (had it done for my gallbladder) but it is nothing to be scared about.
First weight loss goal - 40lbs... DONE! Second weight loss goal - 17lbs...
I dont have any experience with endometriosis but I'm willing to bet there is a high corrolation betwen endo flare ups and fertility meds. Did you mention the egg donations to the gyns when you saw them?
I hope you find some relief soon. I've heard its misserable.
OMG that's awful...can you make an appointment with a regular GYN or a specialist?
First weight loss goal - 40lbs... DONE! Second weight loss goal - 17lbs...
i'm so sorry you're in pain. i totally understand what it's like to be in so much pain you just don't think you can even continue on through the day. when i had shingles in the fall on my face it was the pain i've ever been in in my entire life. i STILL have side-effects from it.
unfortunately, medical issues are almost never cut and dry. some diagnosises take months or years. often you will see many doctors until you see the RIGHT one who will help you. and then, once you have a diagnosis, it will take jsut as long or longer to get the right meds to manage the problem. sorry it's not great news....but it's real.
in the mean time, if it were me, i would have the exploratory surgery. one of two things will happen: you will find out if u have endo or you will find out that you dont and you need to move on. but, it's an answer!
good luck.
She is right... for about 6-7 months I had a who-ha (lol) that was basically swollen shut, hurt so bad it hurt just to look at let alone touch, I couldn't sit, couldn't wear jeans, had over 20 plus exams, at least 10 ultrasounds, went through 3 doctors, a VERY painful biospy, hundreds of dollars in meds and when I finally found a doctor who was determined to help me and even though it took about 6-7 months to recover (and i'm actually still recovering and going through physical therapy) I finally had answers.
And I agree... have the exploratory surgery so they can rule out endo. and possibly find the culprit to what's causing you pain as there might be something that isn't coming up on the ultrasound.
First weight loss goal - 40lbs... DONE! Second weight loss goal - 17lbs...
My SIL had endo, I can tell you a little about what she went through to have the first baby (second one happened without any help)
I do have another idea, that Dr's won't be able to see with a scan. I can pm you later or you can e-mail me and I can respond: madamed517 at gmail
I remember you were going through a real rough patch there. I'm glad you're getting better. In the ER, the doctor said they could do the exploratory surgery to find the cause, but he wanted me to go through the non-invasive testing first.. which I seem to have completed. He also told me that he wanted me to find an endo specialist who's more experienced in looking for the growths.. that many times a surgeon or GYN would miss the growth if they didn't know to look for it. So I'm online now looking for someone who knows what they're doing, and accepts my POS insurance. I really miss medicaid in situations like this! I basically had a free pass to the best doctors.. now I have J's city insurance, and it should just be called shiity insurance
No one wants to accept it. No one good anyway. It may come down to medical loans if I can't find someone on our plan that I like.
thanks madame.. i'll email you
Okay, this is just wrong. I would so change doctors and I'd tell her exactly why. That tech is the crazy one!
So sorry that you're going through this! My mom had endo and had my brother and I just fine. I know she had surgery for it at one point, but I think it was before we were born and I think the surgery she had was pretty minor.
Get off of Google before you scare yourself silly!!