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Got some answers....
I had to call B's surgeon to have them call the genetic counselor cause the nurse there is a jacka$$ and is so rude to me. (Luckily she is retiring in June and I won't have to deal with her anymore). So the actual Dr. called me to go over the results, apparently Brody has a new mutation that they haven't seen and they are not sure what it is capable of doing/causing. Joe and I need tested to see if Bub is the first one to have the mutation or if one of us have it too. If one of us does have it then we would need to go to the oncologist too. And then Addie would need checked out too. They want him to see the oncologist every 6 months so we can catch cancer if it developes quickly so he can be treated and have a better outcome.
I know its for the best to do this, but I never thought/wanted to have to take my child to see a cancer dr. This sucks!!
Anyways thanks for all the support and I'll keep you all updated. Joe and I go in for bloodwork tomorrow and it should take a couple weeks for results. Bubba goes to the oncologist on June 1st.
Re: Got some answers....
Irregardless if she is retiring in June, it doesnt give her the right to be a rude biotches to patients.
(hugs)
sorry to hear this...we'll keep praying for B and you're entire family! Stay strong!
BFP 2: 7/7/2014 Beta 7/8: 115, Beta 7/12: 638, Beta 7/16: 3793, Beta 7/21: 21,625
we'll be keeping you in our thoughts (((Hugs)))