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Bone Marrow Donation?

Has anyone done this?  Or at least added yourself to the registry?  I've been thinking about it for a while and wanted to see if anyone has had any experience.

Re: Bone Marrow Donation?

  • I've been on the registry for about 10 years now. A classmate's sister (and my sister's classmate!) actually was called up to donate-- she said it was not the most pleasant experience, but she knew she was possibly saving someone's life and the staff made it as comfortable as possible and it didn't take much of her time. She has no regrets.

    Even before I decided to become a nurse, I was impressed with how much of a need there is-- especially among African-American folks (not a lot of donors on the registry). I met a man this past year who had his entire marrow switched out to cure his Leukemia and it worked! He looked FANTASTIC and I thought he was about 25 years younger than he actually was. He was at the tail end of his year long cure. Coolest thing ever-- his blood type changed!

     Anyhow, I highly recommend becoming a donor. And the National Donor Registry's web site is chock-full of information-- age and health restrictions, the process, etc. Just google National Bone Marrow Registry.

     

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  • I am on the donor registry, but haven't been called yet.  I worked for a blood cancer organization for awhile and saw firsthand how much of a need there is and how many people struggle trying to find a match.  I even got to witness a recipient being united with her donor for the first time, 5 years after the fact...something I will never forget!  I registered through http://www.dkmsamericas.org/.
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  • I've been on the registry for 15+ years but have never been called.

    It's actually much easier now than it used to be. When I signed up, you had to get 2 vials of blood drawn; now it's just a cheek swab.

    The actual donation is a lot easier now, too. In many cases, they can harvest the bone marrow cells with apheresis (where they hook you up to a machine and filter your blood before returning it to you -- it's similar to the double red cell blood donation, if you're familiar with that). Occasionally I think they still need to do a hip puncture to harvest the marrow which will leave you with a very sore hip for several days but it's a small price to pay to potentially save someone's life.

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  • mesa81mesa81 member
    I'm on the registry-- I added myself back about 10 yrs as well when one of my campers needed a transplant. I actually received a letter 3 years ago (after moving 6+ times since that original time) telling me I was preliminary match for an individual. I filled out a medical questionnaire but at that point I was being evaluated for a medication that I think would make me ineligible at that time. I've reregistered since at a fair last year--- since I got married and my name changed-- I wanted to make sure it all was up to date.
  • FYI - even if you move multiple times and change names, you don't need to re-do the testing (besides, it costs a lot of money to process the samples). I sent an email with my maiden name, the city where I signed up, and the approximate year to marrow.org and they were able to locate my record and update my contact information.

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  • I am not on the registry, but I donated bone marrow when I was 16 for my cousin. It's nice to hear that they don't have to do a hip puncture anymore, because that was absolutely horrible. I've been through a lot and that still ranks pretty darn high on the pain list. It is very rewarding though that you've saved or have lengthened someone's life.
  • I've been on the registry since high school - a classmate's mom had a 15-year battle with cancer and when she received her second transplant we had a bone marrow registry drive at school in her honor. I've never been called up to donate though. Is it weird that I kind of wish I would?! 
  • imageInterrobang:
    I've been on the registry since high school - a classmate's mom had a 15-year battle with cancer and when she received her second transplant we had a bone marrow registry drive at school in her honor. I've never been called up to donate though. Is it weird that I kind of wish I would?! 

    I feel the same way...I kind of want to be called, but feel like it's a strange thing to want!

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