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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Those with Celiac...
DH has been going thru lots of tests lately, Lactose Intolerance, bloodwork for gluten and Celiac. They all came back negative, however today with the colonoscopy the doc suggested coming in for the celiac tests, with the results of the issues we found today.
So... did you find out immediately or did it take a few tests? I guess part of me questions because it seems some foods seem to have more adverse reacations.
FWIW, they believe he has colitis and IBD (IBS). But were waiting for the tests and biopsy they took including the one from the polyp found.
Thanks! 
Re: Those with Celiac...
Peyton had to do a round of blood tests and a GI scope which took a week to come back. Berkeley is on round two of blood tests, next will be a GI scope.
FWIW, my MIL was diagnosed with colitis (also had tons of kidney/liver issues for no known reason--no drinking, etc) and, in retrospect we all think she had Celiac.
Thanks Robyn! I was hoping you'd have this type of response. Good luck with Berkeley, no for for a little one
Good to hear, I just want him to not feel like his stomach is about to explode
So he had a colonoscopy today, and the doc wants him to come back and do an upper endoscopy to check for Celiac? Do I have it right?
That would tick me off - why the heck couldn't they do both upper and lower at the same time to save your DH another anesthesia, you know? Did they see something in the colonoscopy that's leading them to believe that Celiac is more probable than they thought?
I guess I would find out exactly what Celiac blood test they ran already. The thing is, there's no one surefire way to diagnose this disease, and every.single.doctor I've been involved with (8 of them since the beginning of my fiasco) has very outdated information on testing and diagnosis. Here's a really helpful blog I've been learning a lot from, and a video explaining why the biopsy is becoming a thing of the past:
http://www.healthnowmedical.com/blog/2011/07/18/intestinal-biopsy-unnecessary-to-diagnose-celiac-disease/
Sorry he's dealing with this. Don't let them just label him as having IBD - that's a catchall term for "some unknown thing is causing GI problems". It's not a diagnosis at all.
FWIW, the average amount of time it takes a Celiac to get diagnosed is 11 years. Good luck to you both - I hope he find relief very soon!
Good call, I know he had some allergy testing in high school, but thats been 12'ish years ago.
Thanks!