Trouble in Paradise
TarponMonoxide
member
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Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Huh? Now I apparently have endometriosis..???
I went to the doc yesterday for a post op visit -- last Monday I had a 3" ovarian mass removed, along with the tube.
Here is what he told me at the exam: "The surgery was very difficult. Your mass was attached to your bowel and we had to work to remove it from there; you have endometriosis."
I have been through hell and high water for the last 1 and 3/4 years -- this mess all began with a bad period I had -- I wound up in the ER and I saw 5 docs before I finally found the one I had; I had, at the time, a bad fibroid issue.
2 of the docs tried to push Lupron on me -- really. Going to give that to a patient with Graves??? I don't think that's a wise idea --Lupron acts on the pituitary and definitely not warranted for any patient with a disease that ultimately involves the pituitary. (remember; the thyroid and pituitary are pretty much connected)
The fibroids shrunk and this other issue apparently showed up between last March and now; I knew I had the cyst/mass since last March; back then it was much smaller and he did not warrant surgery.
Last March I had a transvag ultrasound and a hysteroscopy -- my lining was thick and he wanted to make sure there was no underlying pathology.
I am going back in 2 weeks for another post op exam -- I want more info and how he's going to take a course of action (I'm pretty much going through menopause right now so there still has to be a cause of action taken anyway)
Here is what he told me at the exam: "The surgery was very difficult. Your mass was attached to your bowel and we had to work to remove it from there; you have endometriosis."
I have been through hell and high water for the last 1 and 3/4 years -- this mess all began with a bad period I had -- I wound up in the ER and I saw 5 docs before I finally found the one I had; I had, at the time, a bad fibroid issue.
2 of the docs tried to push Lupron on me -- really. Going to give that to a patient with Graves??? I don't think that's a wise idea --Lupron acts on the pituitary and definitely not warranted for any patient with a disease that ultimately involves the pituitary. (remember; the thyroid and pituitary are pretty much connected)
The fibroids shrunk and this other issue apparently showed up between last March and now; I knew I had the cyst/mass since last March; back then it was much smaller and he did not warrant surgery.
Last March I had a transvag ultrasound and a hysteroscopy -- my lining was thick and he wanted to make sure there was no underlying pathology.
I am going back in 2 weeks for another post op exam -- I want more info and how he's going to take a course of action (I'm pretty much going through menopause right now so there still has to be a cause of action taken anyway)
Re: Huh? Now I apparently have endometriosis..???
I'm sorry Tarpon.
That sounds like such a rollercoaster. Good job for sticking up for yourself on the Lupron. Are there alternatives you can take? I'm wondering what your options are at this point?
Wishing you better health & less pain.
I'm so sorry. I hate these round and rounds with docs. Been there, still there, sucks being on the ride from hell.
I hope you're at least feeling okay. (hugs)
I just decided no on the Lupron and ran like hell when they suggested I take it. (it also has a strong tie to depression I said no to that and how; Lupron is an injection; where's the antidote if you have an SAE or a reaction to the drug?)
I had no endometriosis symptoms. For the last year and a half I've been on Activella and my periods were light and a little irregular (again, that's probably got to do with rapidly changing hormones).
What kills me is the differning opinons each of these docs had --- one was more concerned wiht a Pap and a mammogram! holy shikeys --- forGET my boobs and my box for now; what about the other issues I'm having???
The last doc --- the one I am currently seeing --- was the only one who suggested a transvag ultrasound and a hysteroscopy and biopsy. From what I heard, abnormal bleeding means Get A Biopsy -- and that is regardless of the patient's age.
hi, im new around the nest... saw Endometriosis and had to be nosy. i hope you dont think im a creeper!
I have it, have had it for 8 years. I recently had issues with it, my doc tried to push Lupron too, but I refused for different reasons... you seem like you arent convinced that is what you have? maybe i read wrong, but i took you saying you have had no symptoms to mean that you arent convinced. i know some women who didnt know they had it (had no pain, no irregular bleeding, the telling signs)until it had left so much scar tissue, they were infertile. so its normal to go undetected.
so, if it helps any, you have T & P from me, a total stranger...
GL!
So what's going on here? You can get endometriosis and not have any pain? Or any symptoms? Since when?
another lurker - but yes, you can have it and not know until there are other issues.
Yup... Yup... and yes it sucks. Guess who diagnosed my endo? Not my GYN - my gastro. My main sign? Stomach pain and bloating. I was misdiagnosed 12 different times. My gastro (who was in the same practice as my gyn and passed me back and forth like a baseball) finally said he refused to see me again until I had a lap. My GYN thought an endo diagnosis was a joke. Oh.. yeah. Opps... my gastro was right.
I did the Lupron. I had a second lap. Drop me a line if you care to discuss further.
And good luck!
ETA: and neither of them are my current doctor/
What kills me is that all 5 of the docs I visited all seemed to be on a different page -- you had TWELVE that couldn't agree!!! What are we teaching in medical schools?
One of the gyns came highly recommended to me by a friend. I didn't even like his exam -- he was the one who was more concerned about a pap and a mammo. (I told her to find another gyn based on the treatment I got)
I originally went back to my gyn's in August for another reason; he was away on vacation and I got to see one of his associates. Don't get me started with what she wanted to do -- this one wanted to remove both my ovaries. Really??? What happens to my estrogen supply??
I hot footed it out of there when I heard that and waited for him to return.
Holy crap.. remove your ovaries?! Now that's new.... no one every suggested that. I can't even recall how many years it took to get a diagnosis. Probably about 7. Some of my diagnosis - depression (really? That makes you bleed like that!), lactose intolerant, glucose intolerant, every gastro diagnosis under the sun, reflux. acid issues, I had an endoscopy and a colonoscopy since you know, my GYN said this was a gastro issue. I was prescribed a high fiber diet, antidepressants, drugs for GI issues. After the endo and the colonoscopy (by the way, even my grandparents had yet to have one) my gastro said "this is NOT a GI issue. Go back to your GYN, you have endo." Dude... really. My GYN didn't believe me. It wasn't until months and months of abdominal pain that I had to go.
I don't think Lupron worked for me. I ended up having a 2nd lap after by a different doctor and he had some stuff to remove. I was place on BC to control the hormones. I was told the best cure was pregnancy. So to answer your question about why now and why no symptoms before, if you had a child, that would have suppressed them during pregnancy and for awhile after.
Doctors suck. I had one endocronologist tell me that I didn't have low blood sugar but that it was all in my head - depression I guess? I told my gastro who told me to see an endo and he said "I guess he missed the hypoglycemia lecture" and referred me to someone else. She did a blood test got the results and wanted to know how I did not pass out with a sugar level of 28 after a glucose test.
I make a habit of collecting my papers from all my doctors - labs, etc. You'd be surprised what someone else in a different specialty will come up with.
Listen to your body. In the end, you know it best.
Horrible, just horrible.
Here is another horrid incident: When my Graves showed its ugly face for reals, I had a heartbeat of over 100 per minute.
I went to my doc. He said "you are dehydrated go home."
Dude....HOW about examining my thyroid manually?????? Give a feel -- I will bet you that it is enlarged --- and check my reflexes! bet you they're increased manyfold!!!!
3 days later i was in the ER, with a heart rate of over 170 per minute -- and that's when they discovered what was wrong with me.
I do not go to that doc anymore. I found another primary md.
That other doc suggested removing both "because you have a cyst on one and you could develop cancer in the other.. You DO have family that died of colon cancer..." Was she kidding??? You bet I ran like hell...and then she said "you know that if we find anything else we'll have to do a hysterectomy..."
you bet your ass I got out of there. Where in the eff did he get her?! I can't figure out how she's in that practice and is staying there.