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i need some T&P

My H is out of town (all guys bach party weekend in Tampa) and i don't want to call him to discuss this....it will ruin his trip. this is literally the first time he's ever taken a trip without family/me.

i saw my doc on wed for my lupus. i've lost more weight but we talked abotu that and he doesn't seem too concerned. I did some lab work and he called me today. Since my appt in August, I've gotten worse (declining kidney function). we're not sure why...but basically, he's started discussing kidney transplants in the near future (1-5 years). i'm totally freaked out. he's adjusting my meds so i'm hoping that will do the trick to regain some function, but he said my kidneys will never be healthy again. this is the first time in 11 years he's ever sounded so seriuos. i'm scared.

thanks

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Re: i need some T&P

  • T&P coming your way!  I hope the meds work!
  • (((((HUGS))))))) and *~*~*~*VIBES*~*~*~

    I am so sorry you got this news while your H is away.

    Did you doctor say if dialysis would be an option before jumping to a transplant??

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  • Definitely sending vibes your way.  I'm sorry you don't have your H there with you.  I know I'd want mine too.

    Hopefully the meds adjustment will do some good. 

  • Aww sweetheart I'm so sorry to hear this.  Big time T&P's are going your way!  I hope the adjustment in meds will help!
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  • imageBMWwife:

    (((((HUGS))))))) and *~*~*~*VIBES*~*~*~

    I am so sorry you got this news while your H is away.

    Did you doctor say if dialysis would be an option before jumping to a transplant??

    he didn't mention dialysis...and i'm guessing bc with my lupus, it won't work. the reason i'm in kidney failure is due to the Lupus so...i'm guessing a transplant is the best option. i don't really know...i feel like i didn't ask the right questions/get any answers. my dad suggested a meeting with my doc when H gets back in town. for now, i'm going to keep the news to myself bc it will absolutely devistate him/ruin his trip. this sucks.

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  • imagebuckswife08:
    imageBMWwife:

    (((((HUGS))))))) and *~*~*~*VIBES*~*~*~

    I am so sorry you got this news while your H is away.

    Did you doctor say if dialysis would be an option before jumping to a transplant??

    he didn't mention dialysis...and i'm guessing bc with my lupus, it won't work. the reason i'm in kidney failure is due to the Lupus so...i'm guessing a transplant is the best option. i don't really know...i feel like i didn't ask the right questions/get any answers. my dad suggested a meeting with my doc when H gets back in town. for now, i'm going to keep the news to myself bc it will absolutely devistate him/ruin his trip. this sucks.

    The meeting is a really good idea. Try to do something fun with B this weekend and keep your mind off of it. Hopefully the meds will help.

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  • Oh, hon I am so sorry! I hate that your H is away right now.

    I think the meeting with the doctor is a great idea. It's always overwhelming to get bad news at the doctor, so I completely understand why you didn't ask him the questions that are coming to mind now. Can you make a note in your phone or write down the questions as you think of them to bring with you to the meeting?

    If you need to talk it out and don't want to call your H please call me anytime. Day or night!

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  • Definitely sending you lots of T&P's. I agree that you should set up a meeting for when your H is back.

    So sorry that you have to deal with this while H is gone!

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  • T&P to you! I hope that the medications can sustain what function you do have. Im sorry youre going through this
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  • I'm so sorry that you're dealing with this and that you're dealing with it alone for the weekend.  Lots of vibes, t&ps, etc your way!

    Hope that you, H, and Doc will be able to sit down and discuss strategies soon.  Sounds really good that your doctor knows you and is being proactive. 

    All our very best; stay strong!!

    image
  • Lots of thoughts and prayers for you.  I hope the medication helps.
  • You'll definitely be in my thoughts and prayers, I hope the medicine is all you need.
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  • Oh boy..... So sad to hear this news. I'll be thinking of you. 
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  • i am so sorry to hear this...and it's awful that you got this news while your dh is oot. you'll be in my t&ps.
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  • Oh no. I'm so sorry for the bad news and that you have to deal with it by yourself. Hopefully the meds work. Sending t&p your way.
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  • I'm sorry to hear that, I am sending TONS of good thoughts and prayers your way.  When your H gets home I agree it'd be good to meet with the doctor!
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  • I missed your post on Friday. I hope you feel better if you've told your H. T&P going your way. ((Hugs))
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