Hudson Valley Nesties
navybride06
member
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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
C's urologist follow up
So we finally met with the urologist for DD (I hated the first one). She has Stage 2 Renal Reflux (urine is going back up into kidneys from bladder). She is on preventative antibiotic for 1 year with a probiotic every other day. Also the Dr was surprised that I was never told her kidneys measured small during my ultrasounds. They are still small, and statistically it is paired with High Blood Pressure in adult hood. Something for her to look out for.She will have another VCUG at 1 year and re-address the situation, as long as she doesn't have too many infections we are fine, otherwise surgery. Also is she gets a high fever that doesn't seem to be tied to ears or runny nose we call doctor or after house go to hospital for urine test immediately.They looked at ultrasounds for J had when he was born since he had a hand deformity (they checked his ears and kidneys -all develop at same time). His looked fine, TG or we would have had to book a VCUG for him and don't preventative care also. *VCUG is when they put a cathedral into the bladder and inject dye into bladder and take xrays of the bladder and kidneys filling and voiding. Not a pleasant thing to see be done on a 1 week old or 6 week old. *
Re: C's urologist follow up
Poor C. at least you guys have a plan of action, converative at first. We had to do a VCUG on K when she was just over a year, she hates getting cathed more than anything, but she had a UTI at a young age, so it was what the doctor recommended. Luckily, she did not have reflex, but sure thing a few weeks ago when she spiked a high temp and had nothing wrong, i brought her in and they wanted to do a urine and we did the cath again.
Bottom line is UTIs are super scary for kids, i felt so bad that we waited even 2 days for K's temp to go down last time. She would spike high and literally shake if she wasn't under blankets when her tylenol and ibuprofen would wear off.
Always missing my Mommy (1954-2010) and Daddy (1943-2012)
TTC since 2009 ; BFP 9/13/10 = MC 10/21/10
DX = DOR/POA (AMH=1.1; AFC=4-5)
Surprise BFP 8/31/11 while waiting to cycle for IVF
Welcomed our little miracle 5/7/12
It must have been hard for her to have all that testing done. Hopefully this doesn't cause her too many issues and glad she's ok.
At this point there are 2 ways this can go.
1) It can outgrow itself (My sister had it and outgrew it after many years- though we are not biological so no correlation other than my mom has been through it before with sister). We carefully monitor and try to avoid infections, since a UTI will go right to her kidneys with the reflux and cause damage
2) An infection goes to her kidneys or she doesn't outgrow it = needs surgery to fix it. We caught it early (my sister's wasn't caught until preschool+ and she outgrew it) so I am hoping to avoid this. If we go, the surgeon/doctor is one of the best in the area. He is head of the group, etc so I am happy with him vs the 1st asshat we saw.
That makes all of the difference in the world. I'm glad you found someone who can help. I don't know anything about her condition specifically but even damaged kidneys have the ability to regenerate, with the exception of the nephrons so hopefully things will work out on their own.
This! Im pretty sure my friends son had the same thing-she was worried about surgery by age 1. And he ended up outgrowning it. Thinking of you guys!
I hope she outgrows it too. I agree with others, I can't believe the kidney size wasn't brought up during your ultrasounds.
Good luck!