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*** EEGs long vent bc i'm going NUTS
I'm hooked up for a 72 hour EEG (electrodes attatched to my head for 3 days. fml) I'm going nutso. I have a thick chord of wires hanging off my head, and I'm wrapped up like a mummy (or brain surgery patient) and I have to carry around this cumbersome battery pack that's recording everything. It wouldn't be so bad if I didn't have an irrational fear and anxiety about chords and wires. Seriously, I've ruined electronics because a wire got tangled and I just cut it off. Also, I told the neurologist and the technician when I experience my seizures.. and they ignored me and have decided to perform the test when they see fit. (my seizures occur a few days before my period, and I suspect Catamenial epilepsy.. so they hook me up AFTER my cycle) I can't shower or bathe. I can't go outside because I look like a freak and I'm being video recorded. I can't drink because the alcohol will change the reading. I can't medititate because the type of meditation I practice makes EEGs go haywire. I can't exercise or do yoga because the pack interferes. I wonder if I can toke. I'm going crazy and freaking out because I feel like some damn cyborg. I'd break down and cry, but I don't feel like locking myself in the bathroom (it's the only place the recording camera can't see or hear me)
I feel like I'd be less upset if the test was being done when I know I experience what they're looking for.. and if I wasn't being recorded. And my head is itchy and I can't scratch.
Jeez I sound like a baby. I'm just cranky
Re: *** EEGs long vent bc i'm going NUTS
You don't sound like a baby - I can imagine anyone would be going nuts right now! Do you have any good movies you can watch or tv shows? Maybe your H can go on a magazine/book run??
I do think it's odd that they are testing you now when you think you know when you have seizures. You'd think they'd want to capture that.
What do you mean by recorded? Are they video taping you too??
This would be way too tempting for me to do something silly. I am feeling you breaking it down to some MC Hammer. Is that allowed??
In the event that I have any sort of episode (seizure, headache, stabbing pain) I push a button, record the time, and then they synch it up with the tape. (or J pushes it for me if I'm not conscious) If nothing happens, they likely won't look at it. But the guy creeps me out and I have this paranoia that he secretly keeps them all for some sort of twisted purpose. I don't actually believe he does, but hey. I feel weird even farting in the same room with the camera.