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health follow-up from EEG last week
And the news is dismal. My MRI shows that I have a "96-99.9%" chance of MS. From the looks of it, I've had it for years, but no one ever thought to test me for it. Apparently my seizures are my flare-ups.
On the up-note, the EEG was normal. She said she didn't want it during my "trigger" week, because she wanted to monitor my normal functions. It showed that I do not have chronic MS.
My blood work shows that certain levels were high (eff if I know what she meant) But apparently, it's the counts of someone who exibits signs of early MS.
Now it's time for a second opinion. She suggested I see a specialist for one, and gave me a number. I have treatment options, but right now I'm overwhelmed. I don't think it's even set in yet. I haven't even told my mother yet. I wonder if she'll say this is all in my head (she has a habit of dismissing every ailment I have, or had)
Re: health follow-up from EEG last week
Oh my gosh - I am so sorry to hear this. I agree that going to a specialist is the best idea, but why don't you just take a break through the end of the year and make an appointment for January.
Sending you big, huge hugs. Many, many hugs.
Thanks for all the hugs and well wishes. I finally told my mom the news, and it went exactally the way I thought it would go. I hung up on her, so she sent me an email, and it's been a back and forth. I finally got through to her, and she apologized in her own way. Mostly by saying she's been in denial since I brought it up, and she shoud have come to terms with it instead of distressing me over it. I think the line of "you're not happy to hear the news?! you're not the one diagnosed with a degenerating disease. how do you think i'm feeling about the diagnosis?" got through to her.
On that note, I've cried for the last hour and a half, and I think it's out of my system for now. I'm trying to keep positive, and I'm exploring treatments (or lack thereof) and possibilities. I'll be contacting the egg donation people later in the week, and alerting them to my withdrawl from the program.
Ditto.
My sister has MS. it's been hard but I'm hopeful you have a better prognosis than she does.