I brought my test results (MRI, EEG, bloodwork) to a good frind of mine who used to be a medical technician. My neurologist was a ping pong ball when trying to give me the news. She went from describing my spinal chord as an electricl chord, to medication options, to lesions... I couldn't follow at all. All I caught was the "99% certain this is MS" from the appointment. So, my friend read everything and told me that there was absolutely conclusive in ANY of the tests to point out that I definitely have anything. I have no lesions (scar tissue caused by episodes) anywhere in my brain. There was a "slight" inclusion in the right hemisphere. And my right eye sustained some permanent damage from the optic neuritis I suffered from this summer. She told me, if anything, it's in the infancy of stages. It's possible that it could be something else mimicing MS, and urged me to see a specialist, and possibly another neurologist that I could speak to comprehensively.
I know I still have something going on, and I need to get everything checked out. I'm just annoyed as all *** that my doctor couldn't be more clear, or answer my questions. Another annoyance? Every visit I've had with her, she's taken a phone call in the exam room in the middle of my appointment... and now I haven't heard back from her in 2 days.
Re: so annoyed. small doctor vent
Forgot I can't drop the F bomb on the nest LOL.
And, thank you all for listening to me vent, and cry. But, more importantly, thank you for your love and support.
Oh sweetie, you're going through a rough time. Vent and cry as much as you want.
My advice would be to find another neurologist. It doesn't sound like you have a lot of faith in the one you have now. H's aunt has MS and I know she went to multiple doctors to get a more conclusive answer.
Please seek as many opinions as it takes for you to feel comfortable. i'm sorry that you weren't happy at your appt. i know how frustrating this all can be. try to stay optimistic. hugs!