I can't begin to tell you how hard it is to watch someone so close to you just suffer a long drawn out process. Granny is literally drowning in her own body. Her chest cavity is filling with fluid, and it's collapsing her lungs. They can't tap it to draw out the fluid because her blood is too thin from the Coumadin. If they stop the Coumadin, she might have a stroke because they can't control the afib her heart is in very well. It's just a no win situation, and even though we and she knows what's coming, it's hard to sit with her and see her so weak, and so scared at the same time. Throu all of this, my mom has been a complete nightmare. We tried putting granny on a rehab floor in a facility, let's just say that joint was a nightmare, and we jailbroke her out of there and went straight back to the hospital (that's a whole other story, you girls would be so irate about how they treated her) it's so hard, and I am so emotionally spent I'm just kinda hanging on, and I feel so torn between spending time with my own kids and husband, verses sitting by her bedside. The guilt is overwhelming. It's been so dramatic, that my aunt signed over power of attorney to me, so I can make all the decisions, and deal with the crazies in my family. Her own brother (mentally unstable brother) was making death threats against her. It's just been absolutely nuts. I don't know where I'm going with this whole post, I guess I just wanted to get it out in the universe and just vent. If she gets out, and we get her home on hospice, I will spend her last dime, and mine, making sure she has the best care and is comfortable. I kinda hope she has no money left at the end of this, so my *** family will see that it's not about the money, and that they aren't getting shitt.
Re: Another granny update
First of all, ((hugs))
Second, you need to FB or text me. Remember, David works in a nursing home in CB -- I don't know which one you had a bad time with (although, I have a feeling I do), but I know that David's nursing home has patients that are on Hospice and in the home. He said the other night that there are beds available -- maybe that would give YOU a break, and lighten your load a little.
Third, if you need help with your kids, I'm 5 minutes from you. If you need anything -- even just a trip to the store or a shower! - call me!
Picture courtesy of Heidi Keene Photography
I don't post on here very often so you and I don't know each other at all, but I do know somewhat what you're going through (minus the crazy family stuff). My father suffered from ALS and since my mom passed away a few years ago, I was power of attorney for him and my sister and I were his sole caregivers. And it sucks SO bad to see someone you love suffering. And I do understand the guilt - not being able to be there all the time. When I wasn't with him, I felt SO guilty. But in the end, I had to take care of myself in order to take care of him, you know?
Anyway, I don't know what I'm saying here either, other than I get it. If it comes down to hospice, we placed dad at the Josie Harper Hospice House by Bergan. We were scared to put him there (or any hospice) because we were afraid of how he would be treated. The nurses and doctors there were SO amazing. The facility is homelike and there's even a playplace for kids if you need to bring your kiddos up. They did everything they could to make him comfortable and treated him with respect, which was one of our biggest concerns. They were with us when my dad passed and held his hand with us.
I'm so sorry you're going through this. I hope you are able to get her the care she needs during this time. Hugs!
I'm so sorry, Tiff. Your Granny is so lucky to have you in her life. You've got SO many people who will help you through this (including everyone on this board!). You are taking on so much...don't be too proud to ask for help.
You're in my prayers. ((hugs))
Sorry to hear this, Tiff. Thanks for the update. Thoughts and prayers abound.
I would echo PPs who said good things about Hospice. My mom (retired a few months ago) was a nursing administrator for Home Health Care/Hospice in my hometown. Hospice staff and their whole philosophy is wonderful.
Hope you find some peace with the situation soon.
I'm sorry Tiff. I know how hard it is to watch someone suffer up till their final moments. Your grandma appreciates everything you are doing for her and I'm sure your love and support is making this difficult time for her more peaceful.
Your family is in my prayers.
I am so sorry Tiff.
We're here for you if you need us.
She's so lucky to have you. Best wishes during this terribly hard time.