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When is it acceptable to call back?
Yesterday I talked to the medical records department at the hospital in Orlando where I had my miscarriage. They said the autopsy results were ready and my doctor in Texas needed to request my records.
So yesterday at 10 AM I left a message on the nurses line telling them to fax in the signed request sheet that I had left the day prior to obtain those records. I even left the fax number for them to fax in.
I still have not heard back. It's been over 24 hours. Not only do I want to know if I can find out any answers as to what went wrong but I need to know because if there was some sort of genetic issues then I need to make an appointment with a Genetic Counselor in San Antonio 3 hours away from my house. I would like to do that ASAP if possible because I have heard there is a long wait to get in.
Ugh.
Am I being impatient? When would be appropriate time to call back? Today? Tomorrow? Next week?
Sorry, I know my miscarriage isn't everyone's top priority, including my doctor's. but I can't determine if I am being unjustly impatient. Ha.
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
Re: When is it acceptable to call back?
DX: 6/9/2011: Azoo ICSI/IVF only option for biological child
IVF #1: ER - 9/26 * ET - 10/1 * beta#1 10/13 - 140 * beta#2 10/17 - 477 * beta#3 10/20 - 1101
1st u/s at 6w6d - one hb * 2nd u/s at 8w3d - no hb detected 11/10/11 * natural m/c 11/13/11
FET #1 Jan/Feb 2012 - 3 delays - cancelled 2/13
FET #1.2 - May/June 2012 - ET 6/6/* beta#1 6/15 - 95 * beta #2 6/19 - 322 * beta #3 6/22 - 940
7/6 1st u/s @ 7 weeks - one beautiful hb - released from RE
EDD 2/22/2013
PAIF/SAIF/PGAL welcome
Thanks everyone
Sometimes I can't tell if I am crazy or not. Although I am pretty sure my doctor's office thinks I am nuts. Ha!
I will give them a call around 1 PM Texas time. That way they will be back from lunch.
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
I'm not understanding why your Dr. has to request them. They are your medical records, and you should be able to have access to them.
However, I would call whenever you feel like it. I faxed for a patients medical records on Tuesday ... i still haven't rec'd anything. Thankfully she cancelled her appt but they office I requested them from doesn't know that. I rarely get records with out having to call at least once.
G/L! I hope you are able to get some answers!
Also, you mentioned that you thought your fever early on could have something to do with it. Will they be able to confirm or deny that?
I'm really sorry if I sound like a jerk.
Ugh. So I called my doctor in Texas I am still waiting for a call back. But on the off chance I could find out more information from Winnie Palmer I called and they won't tell me the results over the phone. My doctor in Texas has to tell me. But they did say they faxed the results yesterday around 11 AM to them. Gawd, I hate my doctors office. The take FOREVER to return a call.....
No worries!
Initially I opted not to do the autopsy since a majority of the time the results are inconclusive. But the day after the baby died (and a week before I naturally miscarried), I was informed that my 13 week NT scan came back as high risk for Trisomy 13/18........which is much, much worse than Down Syndrome and is a chromosome disorder that is basically fatal. So we opted to have the baby sent to pathology to see if there were any genetic issues that we need be aware of before TTC again. We should have a definite answer from the results if there was a chromosome issue or not. Which also might be an indicator as to why I have such issues getting pregnant........
I have mixed emotions on getting the results back. Part of me wants answers but then part of me would be happy to hear "inconclusive" results (meaning no chromosome problems).
And yes, I was/am concerned about my high fever early on in pregnancy, although most of the doctors I meet with over this whole ordeal kind of dismissed that theory as to what went wrong. I was super concerned about Spina Bifida, which could have been caused by a high fever, but the good news is when the baby was examined after the miscarriage by the doctor, he said there was no visible evidence of Spina Bifida. However, I should know more from the pathology report.
Sigh. So yeah, if my effing doctor could call me back with the results I could get off these pins and needles......
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
That's RIDICULOUS. I can't believe after all that they have put you through that they would keep you on pins and needles like this. You said you're changing doctors after this right? (Maybe I'm confused, I thought you mentioned that.) I'm sure I would be a ball of emotions if I was in your shoes. As much as you want an "answer" it's almost like inconclusive is the better scenario here, because you would know it's not a genetic issue at least. But it will still leave you wondering. Sigh. ((((hugs))))
If its inconclusive, does that tell you anything besides it was a m/c? Does this m/c now put you in the high risk catergory? My Dr told me I had to have 3 m/cs in a row to be labeled high risk. What steps do you take now?
I'm sorry, Kathy. I know this is so difficult. Hugs.
Yeah, I am planning on switching doctors, but in the mean time I kinda gotta still use them : What really sucks is my doctor is out until mid-Feb due to a injury so he's not even available to answer my questions. Anything I ask at the moment is all answered by the nurses.........which right now I would really like answers from a DOCTOR.
I did find another OB here in Corpus Christi that comes highly recommended. However, the earliest I can get in with her is mid-Feb. But actually I am thinking of finding a RE in San Antonio (which is 3 hours away) and canceling my appointment with my new doctor. Still undecided......
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
Let's say there was a chromosomal abnormalcy. Would it increase your chances of having another baby with the same problem? Maybe, depending on what it was?
Well, it depends. Chances are no. If it is indeed Trisomy 13/18 the odds that it was a fluke this one time is strongly in my favor. Like over 99% I think.
However, I am a tad worried because I know my Aunt had a miscarriage at 15 weeks and there were some severe issues with the baby. I don't know what exactly the issues were, or if she was given a diagnosis, but I know the baby was missing most of his brain. She was advised to terminate the baby, but thankfully it never came to that because she miscarried. She was in her mid 40's and I am not sure of the specifics but it is a little worrisome to me. I know I need to call her to find out more but I have been putting off that call because I a nervous as to what she will say. I guess I wanted to wait until I got my pathology results.
So long story short, there is a chance that this is a hereditary issue. Fingers crossed that is not the case.....
If its inconclusive, does that tell you anything besides it was a m/c?
Yeah, I think if it is inconclusive I won't know anymore than what I know now. But I think meeting with a Genetic Counselor is something we should do before considering TTC again.
Does this m/c now put you in the high risk catergory? My Dr told me I had to have 3 m/cs in a row to be labeled high risk.
I am not sure. Heck, I haven't even talked with my doctor since this all happened (which totally sucks). All the doctors at the hospital I asked said this is something that I need to discuss with my doctor in Texas once I find out the results from the pathology report.
What steps do you take now?
Good question!!! I am kinda in limbo right now. I don't really have a doctor right now (or at least one that is available) so I guess I just have to wait to see what's next for us. It's frustrating.....
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
Ellie ~ 3.29.12
Wedding | Blog
That really stinks that you aren't able to talk to your Dr. I'm surprised there isn't another Dr taking over his patients.
Good luck. I hope you're able to get some answers. And thanks for answering my questions. I hope they didn't upset you.
So to answer your question Jen, yes I will be considered high risk when/if we TTC again. My doctors office called me back and said they never received the pathology report (OMG, my head's gonna explode) and they gave me an OB's name who specializes in Maternal Fetal Medicine who could help me out. However, when I called them they said I need a referral from my doctor in order to make an appointment.
Ugh. Looks like I will have to be calling my doctor back to get that referral. And looks like I will have to call the hospital back once again to request them to send my medical records.
Everyone now thinks I am crazy with the amount of phone calls I have been making lately.............haha.
.
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism
Ok, because I feel the need to give a play by play of everything that is going on......
Again, not important to anyone but myself.....
But I FINALLY got the results and everything was A-OK with the baby. No chromosome issues, no deformities, all normal.
Whew.
While it doesn't give me any answers, I do feel a sense of relief that my baby was healthy while it lasted. Poor little guy
Baby Macy is here!
12/09 - Macy (daughter) | 4/10 - Began TTC Baby #2 | 12/10 - Chemical Pregnancy | 1/12 - Miscarriage at 14 weeks | DX - PCOS & Hyperthyroidism