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Ok I give up then.

I got my tests result back today from my Dr's appt the other day. The Dr Checked for Celiacs and checked my liver function. I guess there was some concern about a possible ulcer. Everything came back fine, which is good. I should be jumping for joy but I am just so frustrated. I have felt like absolute crap for months now. Stomach problems, migraines, numbess & tingling in my arm & hand fatigue. Just a whole bunch of junk. I've had an MRI of head & spine, physical therapy, complete blood work. I am hypo thryroid but at this time my thryroid is within normal limits now.  I'm now back on my migraine meds which I didn't want.

At this point I feel like it's all in my head. I know I'm not making this up I truly feel like crap. At this point I'm at a loss...I don't know what I should do.

Re: Ok I give up then.

  • Don't give up! I know this is frustrating but it is also good to have ruled out a few of the causes.

    My only question is what are your eating habits? Migraines and stomach issues could be triggered by certain foods. Maybe start a food journal and track your body's reaction after food to try to narrow down if it is food related. 

    Also, it could be stress in general as well...


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  • Do you take BCPs? Those gave me migraine headaches very frequently (maybe 4 out of 7 days of the week) when I took them.
  • Have you been tested for lymes?
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  • imagestatwaldy:

    Don't give up! I know this is frustrating but it is also good to have ruled out a few of the causes.

    My only question is what are your eating habits? Migraines and stomach issues could be triggered by certain foods. Maybe start a food journal and track your body's reaction after food to try to narrow down if it is food related. 

    Also, it could be stress in general as well...


    We ( DH & I ) are starting to think it's anxiety related... I've been tracking my foods and no one thing seems to trigger any of it. I eat pretty healthfully 90% of the time

  • imagedoglove:
    Do you take BCPs? Those gave me migraine headaches very frequently (maybe 4 out of 7 days of the week) when I took them.

    Nope no BC at all for that reason, it makes the migraines so much worse!

  • imagesteeser03:
    Have you been tested for lymes?

    Yes they checked for Lyme disease, lupus,MS, Celiacs, rheumatoid Arthritis...

  • It may very well be anxiety.  I was feeling similar late last year due to a ton of stress and personal stuff over the past few years  I attributed it to my thyroid meds being off but I had every test under the sun done, blood work, ect.  I was also having anxiety attacks at night that would keep me up until 1-2 AM at least once a week.  I started in counseling in December, ended up hospitalized overnight in Jan for heart palpitations that were also anxiety related (still had the full cardiac workup though) and ended up on meds for anxiety combined with the counseling.  It's been about 2 months now but I am sleeping better and generally feeling better.  I still have good and bad days but don't underestimate the power anxiety can have over your entire well-being.  Good luck and I hope you feel better soon...it sucks.
  • Did the Celiac test come back negative or inconclusive? It is possible to have the bloodtest come back inconclusive but you can have Celiac. Or it could be a gluten sensitivity, in which case you would feel a lot better giving up gluten.
    imageimageimage
  • imageMrs Acorn Blue:
    It may very well be anxiety.  I was feeling similar late last year due to a ton of stress and personal stuff over the past few years  I attributed it to my thyroid meds being off but I had every test under the sun done, blood work, ect.  I was also having anxiety attacks at night that would keep me up until 1-2 AM at least once a week.  I started in counseling in December, ended up hospitalized overnight in Jan for heart palpitations that were also anxiety related (still had the full cardiac workup though) and ended up on meds for anxiety combined with the counseling.  It's been about 2 months now but I am sleeping better and generally feeling better.  I still have good and bad days but don't underestimate the power anxiety can have over your entire well-being.  Good luck and I hope you feel better soon...it sucks.

    I have put a call in to a counseling place so I'm just waiting for a call back. I was in counseling last summer and it did help for a bit but I felt like I hit a wall with the women when she just kept asking me why I felt like I should be there, and I truly didn't know except that I felt anxious all the time even over little things. So I stopped going but things have just gotten worse. I've been resisting going on anxiety meds but I think the time has come that I have to give them a shot. Did you feel an immediate difference once you started them?

  • imagekristinanddan:
    Did the Celiac test come back negative or inconclusive? It is possible to have the bloodtest come back inconclusive but you can have Celiac. Or it could be a gluten sensitivity, in which case you would feel a lot better giving up gluten.

    The letter from the Dr said negative. So I'm assuming it was pretty cut & dry. Is it possible though to still be sensitive to it without actually having Celiacs? I'm debating still cutting out gluten or at least all of the bbvious sources of it but I don't know if that is a smart choice.

  • You definately need to find the right person for counseling to be effective.  I started with one person but our styles were different.  The second person I loved but she left the practice so I'm on to #3 which is also a good match.

    I resisted meds until I ended up in the hospital.  I finally broke down then and realized I needed something to take the edge off.  The meds took some time to take effect.  I have two...my preventative (Buspirone) which has taken 3 increases but I (cross fingers) think is finally working ok. There are minimal side effects too. I take a Lorazepam on the nights I have to work still because I get so anxious about not being able to fall asleep.  I HATE taking it but it's necessary right now.  

    I am also doing the non-medicated options such as limiting caffeine and alcohol, trying to limit sugar, exercising regularly and practicing deep breathing and meditation.  Yoga has also been shown to help so I'm trying to find a studio I like.  

  • Sounds very frustrating, which if it is anxiety, I'm sure this isn't helping you. Good luck, I hope you can find an answer soon!
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  • celiac blood test can be negative even if you have it; you have to get an egd with biopsy of the small intestine to say for sure, also need to make sure that the pathologist that looks at the biopsy sees samples of celiac often otherwise they might miss it
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