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Update from my doctor :*(
I saw a specialist today regarding my pulmonary embolisms (a hematologist). They weren't able to find anything on my blood tests. So on one hand, this could be viewed as a good thing---I don't necessarily have an underlying condition that may have caused this.
But on the other hand, he looked at me in the face and said....."Emily, you have an extremely life threatening event.....and I have NO idea why. That is concerning to me. It means that something is going on in your body that has the potential to kill you and I'm not sure exactly why."
Bottom line---I will probably have to stay on blood thinners for the rest of my life. He said that he wouldn't really feel comfortable for me to ever come off of them. Will this change? Possibly.
In the meantime---I will be needing to get my blood levels checked once a week to manage my therapy and make sure that my blood stays thinned. And of course I am at a serious risk for internal bleeding.
And to make this even more fun---Coumadin is a category X drug during pregnancy. 40% birth defects pretty much guaranteed....serious ones. Fortunately, I can switch medications to an injectable medication during pregnancy but there better not be any "oops" from me! But there always is the good chance that they will come out with something better in a few years.
But this really sucks....
Emily
7-10-04 
Re: Update from my doctor :*(
Your guess is as good as mine (and my hematologists at this point!)
There are a lot of "maybes"....but the bottom line is that they don't want to risk my life on a "maybe". Maybe it was caused by this.....but what if it wasn't??
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Will they continue to seek an answer as to why this is happening while you are on these thinners? I really hope so. I hate to hear that you will be on these meds forever.
I'm praying for you.
oh my gosh Emily, I'm sure that isn't the news you were hoping to hear. I suppose, though, you can take comfort that your doctor was being straight with you, and so long as you are diligent about your meds routine you should stay healthy until thecause of the embolisms could be determined.
(you are a case for Dr. House! jk.. hope that made you chuckle!)
I'm so sorry Emily!! My heart dropped when I read this! I am praying for healing in your body! Take Care Sweetie!
I'm really sorry to hear that you got such heavy news. I pray things will work out.
Sorry to hear you didn't get better news from your Dr. I'll be saying prayers for you that there are able to figure out what is going on so they can get you off those meds.
((HUGS))
Well certainly no one wants to chance your life on a maybe. ?I really hope that something changes for the better for you and you don't have to remain on meds forever.?