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More not-so-great news from the doc...
Just re-posting this from the bump because I don't have the energy to re-write it...
The doc just called me with the results of my AFP test...they came back at high risk for downs syndrome.
My normal risk for my age would be 1 in 700...but my actual risk is 1 in 40.
1 in 40. That friggen sucks.
First it was dealing with the fact that I carry the CF gene. When we passed that hurdle I thought we were done. Now I have to worry that the baby has downs.
I must have some pretty sh!tty karma or something.
I am sad. I want to leave work and go home and cry.
I scheduled the amnio for next Wednesday. The doc said the risks for m/c from the amnio were 1 in 300, so he recommended doing it, even if I wasn't going to terminate (I'm not). Just for piece of mine. What do you guys think? I can cancel it if I change my mind. Part of me is petrified of having the amnio, but the other part of me won't be able to last till September not knowing....
Re: More not-so-great news from the doc...
ooh man Danielle...I'm soooo sorry you are going through all this. Just out of curiosity, what makes them even test for these things in the first place? It's not like you are over 35 and a higher risk. Do you ask them to test for different things? Or is it routine? Man...I'm having a hard enough time getting pregnant, I don't even want to think about all of the possibilities of something going wrong once I do.
I really don't know what kind of advice to give you because I am not in your situation, but honestly, if you don't plan on terminating your child regardless, then why put yourself at risk for a possible m/c by going through with the amnio? I totally understand about not wanting to wait 'til when the baby gets here tho'. You and the baby are in my thoughts and prayers. Best wishes on whatever you decide.
The CF test is a standard test that is done in one of the first blood draws when you go to the doc. The test I had Tuesday - the AFP test - not standard for all docs unless you are over 35 but for my new doc it is standard for everyone. If I had stayed with my old doc, he would not have even run this test becuse I was not "high risk" - which is good and bad. Good because if the baby is healthy we wouldn't have had any worry, but bad because if it does have down's we would have been completely caught off guard.
I'm so sorry you are going through this. I think, that even with the somewhat high risk with the amnio, you should go ahead and do it. You've been experiencing so many ups and downs (I feel) with your pregnancy and its really important to keep your stress level down throughout pregnancy as much as you can. At least you would know one way or the other.
It's a really hard decision and not one I'm sure you want to have to think about - big hugs - I hope it works out.
I'm so sorry Danielle, this is supposed to be such a blissful time for you and it just seems to be one thing after another.
If it were me, I'd probably get the amnio, but Bonnie makes a good point too, I really don't know what to tell you. I'm praying for you though girl.
I'm so sorry you're going throught this. I've been concerned about that for awhile, because my brother has multiple disabilities. Also. I'm a special education teacher and have thought about what that must be like and would I would do. It might depend on how stressed you would be not knowing and how much that would affect the baby.
Best wishes. Keep us posted.
Oh Danielle, I am so sorry that you are going through this hurdle. These things are so scary. If I were you I would do the test. It will help you relax a bit. My coworker's sister had a similar result on the first test and it ended up being fine. She is in her 20's and the baby is totally healthy. Don't worry too much.
Your baby will be wonderful and beautiful. You guys are going to be amazing parents and everything will work out for the best. I know it.
Feel better and let us know if you need anything. Sending lots of love and good wishes your way!
Oh Danielle, this totally sucks, I'm sorry you're dealing with this. I cannot even imagine how tough it must be on you. Honestly, if I were in your shoes, I'd probably get the amnio. Mostly because I would want to know and prepare myself if the baby were to have down's. And also I would be a nervous wreck waiting until September.
Your baby is going to be beautiful and wonderful and you and Joe are going to be the best parents no matter what. Please take care of yourself.
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Danielle-
I'm so sorry you have to even think about these things, I know how stressful it is. I was of the mind to have all my information up front, and then decide how to progress. If something was going to be wrong with a body part/function, I would have wanted to know so that if I needed to, I could research ahead of time and line up specialists. But do what is right for you. I'll be thinking about you.
I couldn;t have said this better. I am so sorry that you are sad. I will keep you, Joe and the baby in my prayers. If there is anything that I can do, let me know.
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Dani,
Is this based on the combined data from the blood AFP and the NT ultrasound? Did you have an NT ultrasound done? (I can't remember) Regardless, if it were me, I would have the amnio done. Remember that the "loss" risk #'s also include those pregnancies that would have been lost with our without the amnio, there's no way to evaluate that, so the increased risk is even smaller than you might think.
I am so sorry that the early weeks of this pregnancy (now not so early) have been so wracked with anxiety for you!! Keep the faith, know that you'll cross each bridge as you come to it, and try to avoid making yourself ill over the "might be".
Hugs hugs hugs,
-Lori
Hi Lori,
No, this was just based on the AFP test. I didn't get an NT screen because my old doc only does them if you are over 35, and by the time I switched docs it was too late in the pregnancy for one.
My doc said the same thing as you - that the risks of m/c because of the amnio are so hard to calculate because some of those pregnancies would have miscarried naturally anyway. He said he can't remember the last time he heard of a patient miscarrying after an amnio, which made me feel better. He routinely does them for his patients over 35, regardless of test results, so I think he's done a ton of them, which makes me feel better.
In a way i am dreading it, but in a way I am looking forward to finally knowing that the baby is healthy for certain and moving on!!!
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Danielle--sorry to chime in late here, but I am siding with the majority to go ahead and have the amnio done. To have some peace of mind knowing you went through with it, may bring you some solace.
God is in control of even the impossible--I am certainly praying for you. Many hugs to you right now!