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Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
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Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Mom's - down syndrome testing?
I have my first appointment with my regular ob today, and the nurse called me on my way in and asked if I wanted to have this testing done. I said okay, not really thinking about it.
I asked DH and he said it's up to me (*sigh*)
What have you done?
Thanks!
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Re: Mom's - down syndrome testing?
I chose not to have it done. We had an US done, and there were no "markers", so I was happy with that. I just figured I wouldn't do anything about it anyway, so why be nervous for 9 months.
Good Luck with your decision!
I did with Melinda because I was over 35 and was more at risk for it. But...a couple that we're very good friends with (husband was in our wedding) had their second daughter a few months before Tristan was born. They, at the time, were in their mid twenties so weren't considered in the risk zone. They had the usual ultra sounds and nothing showed. Their daughter was born with Down. The one thing they came away with was they wish they at least had known so they could have done their homework and felt more prepared. They wouldn't change a thing about her, but the shock of having her and knowing almost instantly that something was wrong was very traumatizing for them.
So, it is definitely a personal preference, but sometimes it's helpful to hear others' stories. I was happy I had it done with Melinda.
This is exactly why I had it done - We wouldn't have terminated or anything, but just so we knew and were prepared for it adequately verses getting a surprise and then having to cope with it and the birth all at once.
It's completely up to you - I would just recommend that if you do decide to get it done to discuss with DH what you would do if it did come back with a high probability and if LO is born with DS just so you are on the same page and prepared.
It doesn't come back as like yes or no from what I remember - it's more a probability - I think mine was initially like a 1 in 10,001 or 1 in 100,001 chance. I think it's not until its like 1 in 235 that they might suggest additional tests (If it does come back with a higher than desired probability, you have the option for additional test options that have more definitive answers, but that are more risky such an an amnio).
Thanks ladies.
I actually called my sister freaking out (she has three kids) and she told me she did it with all three. She said the same as Amber, they give you a 1 in x amount of a chance.
So.... I still don't know what to do.
I don't want to worry over nothing, but now that it's in my head I will be concerned about it anyways.
Just FYI you may want to call your insurance since I've read of a few that don't cover the test unless you're considered high risk. Also if you're still unsure- I read that some ladies had it done but just did not ask the results if they decided that route. This way they had a little more time to think about their decision and the doctor could be prepared at time of birth either way.
With Ben, I had the quad screen blood test done at 16 weeks. I had been very healthy, was younger, and wasn't worried enough for the NT Scan and my doctor didn't recommend it.
With Maddy, I was so sick at the start of my pregnancy with bronchitis and on antibiotics, that I wanted an extra peek at my little one (I was only "supposed" to get one ultrasound at 20w b/c no other risk factors for earlier ones). So I did the NT Scan at 12 weeks (it's an ultrasound and a blood test, and results are a chance result).
Personally, I wanted to do some level of testing with each baby. We would not have terminated, but I am definitely a preparer. I would want to know every possibility. And if for some reason anything comes back positive, the first step isn't that your child definitely has it, it's further testing. I know the testing still can't catch everything but the chance to know anything I need to prepare for was important to me.
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THis!
Owen actually came back with a high chance of having spina bifida. He does not have it, but I was able to do lots of research and find out how I would handle it if he did. I had a level 2 u/s which showed that if he did have it, it wasn't severe. I am glad I knew!
I'm not trying to be an alarmist, or scare you, b/c pregnancy is scary since you don't know what's going on with someone you love so much already. It's non-invasive testing that I did w/both girls b/c I wanted to be prepared for them, not b/c I would terminate.
w/ N, my odds of Ds were 1 in 25 (trisomies 13&18 were 1 in 2500) based on bw alone.
I'm grateful everyday that I had it done with Norah b/c I was prepared when I heard she had a major heart defect (that, after birth was less major, but still significant), and multiple congenital issues. Because I Knew she had problems, her intestines were checked out in the NICU and we knew she'd need surgery before they could twist and cause irreparable damage. I was able to prepare for all of it (to a degree) before she was born and just enjoy her while we waited instead of freak out and stress out about the unknowns after she was born.
**I did still stress & freak out, but I knew all the risks and what she might need before she was born so hearing it again, I understood what the drs were talking about. I didn't have to worry about forgetting what they were telling me before I could research it since I'd already done that part.
It took 5 failed IUIs and a failed IVF, but our FET worked!
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Our baby girl was born on April 27, 2011!