Edmund update

Ciaram22

Today we met with plastic surgeons to discuss timelines and what steps will need to be taken to correct the lip and palate.

He will need a NAM device (Nasoalveolar Molding) to help mold and shape the palate so that it will be easier to close once that surgery comes up. So that pushes his lip repair back to 4 or 5 months instead of 3 months.

We also have to tape his lip to help stretch it and force it to grow closer together to make the lip repair go a little smoother.

Our next step is to meet with the Orthodontist to get Edmund fitted for his NAM which will require us to go to Children's hospital once a week to have the device adjusted. We will have to tape his lip continuously until the lip repair.

It's so frustrating to see him like this because he looks so sad and uncomfortable. He's not taking his bottle like he normally does but they told us that was normal for the first couple days.

The good news is that it can all be fixed! Yes it's going to be a stressful year of Drs appointments and at least 2 surgeries plus followups. I know it will all be worth it in the end and I'm just really glad that he won't remember any of it. 

Barbett

well he is a cute little guy before surgery and he will be a cute little guy after. sending vibes that his sugerys and everything else go smoothly and leave the smallest scars possible.

Soon2BMrsSikes

I'm sorry you guys (and little Edmund) are having to go through all this, but I'm glad to hear it can all be fixed, He looks so adorable in your siggy pic!

LesPaul

That's good news, Ciara.  I'm sorry you all have to go through this, but it sounds like you have a good plan with the surgeon.  T&P for you, H, and Edmund.

futuremrsofficer

Even though it can be fixed it doesn't make it any less painful, stressful, and frustrating to deal with. Having a plan always makes me feel better about things. I'm glad you have one, and if you have to wait a few more months for the surgery in order to have the best possible outcome, so be it. In the mean time just love on him all you can, and think back on this time when he's 14 and being a snot.  I think Edmund is perfect and beautiful in every way.

thecarrotflower

You have such a good attitude even when you are being faced with some really hard and frustrating things. You are doing a great job at being your little boys mama, and your right he wont remember any of this. I am glad you have a plan.

snoopy3319

I'm so sorry that you guys have to go through this for the next year, but it's so good to know there's an end in sight. Lots of good vibes for quick recoveries and a happy baby.

eouellet

I'm glad you guys have a plan of action!  Soon enough, the surgeries and hospital visits will all be a thing of the past.

rebaann

It sounds like you have a really good plan in place and I am so glad that it can be fixed.  I know it will be a stressful and long first year, but we are all here for you if you need us.

starsailorr26

I'm sorry you're going through this but glad you have a plan. I hope everything goes well and that Edmund will be otherwise healthy.

abarber340

I'm so sorry that you and Edmund are having to go through this. I'm glad that there is a good plan in placer and hope that everything goes exactly according to the plan.