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Dear Community,

Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.

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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.

Re: Ksun

  • He is hanging in there! He has to start Interferon treatment in the next couple of weeks, so we are running around like crazy people trying to get everything done.

     It is a 12 month treatment program for prevention. He has to go to a clinic M-F for 4 weeks, then after for the next 11 months he gives him self injections MWF. The side effects are similar to the flu and we don't anticipate any of the harsher side effects (hair loss, depression, etc) since he is young.

    The treatment can also affect his fertility, so we have to have sperm frozen, but in order to do that, the center (and the FDA) requires an STD test, so he was able to get that done yesterday. He can't start the treatment until he gets his junk frozen, so we are waiting on that to be done.

     

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  • Wow that sounds pretty hectic but hopefully your schedule will calm down soon. I'm sure everything will work out and be sure to let us know if you need any help or support!
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  • oh man. I had no idea there was so much involved in his recovery process (i feel like a poop head).

    I'm really sorry you guys are having to deal with all of this. I've been saving up my T&Ps and they are going to you guys! <3 

    BabyFruit Ticker
  • Yes, very hectic with tons of appts, but luckily both of our bosses have been really great!

    Thanks :)

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  • imagejesss10:

    oh man. I had no idea there was so much involved in his recovery process (i feel like a poop head).

    I'm really sorry you guys are having to deal with all of this. I've been saving up my T&Ps and they are going to you guys! <3 

    This too! I had no idea, I feel like a smelly poop head. I love you guys. I'm seriously here if you need anything at all!!!!!!!!!!

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  • imageBasebalbride:
    imagejesss10:

    oh man. I had no idea there was so much involved in his recovery process (i feel like a poop head).

    I'm really sorry you guys are having to deal with all of this. I've been saving up my T&Ps and they are going to you guys! <3 

    This too! I had no idea, I feel like a smelly poop head. I love you guys. I'm seriously here if you need anything at all!!!!!!!!!!

    OMG, stop. I haven't told anyone because it all happened pretty fast! No need to feel like poop heads, OK?

    I do appreciate all the T&P's, though Big Smile

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  • I do though. KSUN I would catch a grenade for you... ;) really though ANYTHING you need I am here!!!!!!
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  • I'm sorry you guys have to go through this. Cancer sucks!

    I'm not sure if I mentioned this before, but in case I didn't, I thought I'd say it now. Make sure he talks to his doctor about any and all side effects, even if he thinks he can deal with them. For example, if he experiences any nausea with the interferon, there are dozens of different anti-emetics out there that can help with that - it's just a matter on figuring out which one works for him. For me, it took me a while to complain to my onc about my nausea because I figured, well, it's chemo, of course I'm going to feel pukey. However, once we figured out that the drug emend worked best for me, it was a night and day difference. So remember that even if it's a side effect that is just par for the course with the interferon, there is a good chance that there is something he can take or do to combat it if he talks to his doctor about it.

    I mean this whole-heartedly when I say that, in many aspects, I think it's harder to be the loved one of a cancer patient than it is to be the patient yourself. At least when you are the one who is sick, you're actively doing something to kick cancer's ass, as opposed to just standing back and watching someone you love go through it. So hang in there, and remember to take care of yourself through all of this, too!

    If you have any questions, let me know - I'd be happy to help in whatever way I can.  

  • imagekevandkatie:

    I'm sorry you guys have to go through this. Cancer sucks!

    I'm not sure if I mentioned this before, but in case I didn't, I thought I'd say it now. Make sure he talks to his doctor about any and all side effects, even if he thinks he can deal with them. For example, if he experiences any nausea with the interferon, there are dozens of different anti-emetics out there that can help with that - it's just a matter on figuring out which one works for him. For me, it took me a while to complain to my onc about my nausea because I figured, well, it's chemo, of course I'm going to feel pukey. However, once we figured out that the drug emend worked best for me, it was a night and day difference. So remember that even if it's a side effect that is just par for the course with the interferon, there is a good chance that there is something he can take or do to combat it if he talks to his doctor about it.

    I mean this whole-heartedly when I say that, in many aspects, I think it's harder to be the loved one of a cancer patient than it is to be the patient yourself. At least when you are the one who is sick, you're actively doing something to kick cancer's ass, as opposed to just standing back and watching someone you love go through it. So hang in there, and remember to take care of yourself through all of this, too!

    If you have any questions, let me know - I'd be happy to help in whatever way I can.  

    Thanks! I would have thought the same thing about the nausea. The doc is giving a few medications to combat some of the side effects (the depression and high fever), but if H starts to feel yucky, I will suggest getting something from the doc to help with that!!

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