Philadelphia Nesties
MrsBeagle
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Did we discuss the CHOP kidney transplant case?
It's been all over the news.
http://www.cnn.com/2012/01/18/health/organ-transplant-child/index.html
Thoughts?
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Re: Did we discuss the CHOP kidney transplant case?
I have a few thoughts, some are probably flamable.
1. We do not know CHOP/the doctor's side of the story. And we never will due to privacy laws.
2. Having MR does not automatically exclude you from recieving transplants.
3. She may not be a good candidate for any number of reasons. It's possible that the child is not healthy enough for a transplant or that the medications she would be put on after the transplant may make her sicker. It's not like transplant=healthy. She would be on immunosuppresants and anti-rejection meds for the rest of her life, and there are side effects. There are so many factors impacting this that aren't addressed in the news articles.
4. I wonder what the transplant board would say
5. The mom is fighting for her child, and that is completely understandable. Any mother would do that.
I feel like essential pieces of information are missing, so I'm not going to jump all over the doctor until know for sure. It is a very sad situation and my heart goes out to the family.
From what I read it seems like there is way more we aren't allowed to know. I think the mom sees this as an instant fix which is probably not the case.
I do feel for the mom she just wants a healthy kid.
Honestly? I think the mother is full of shiit.
We had an experience with DS at CHOP last summer that amazingly ended up being a none issue. But for about five days it was hell on earth. Based on that experience, and the follow up since, I do not buy her story for one second.
CHOP can't refute her claims due to privacy, so in her desperation it is easy for her to publicly back them into a wall.
This is not Podunk, PA. There are two other children's hospitals in the city alone, and a third less than a hour away. If there was a doctor who thought this girl was a viable candidate for a transplant, even one that was a private donation, they would be coming forward. Have these parents gone for a second opinion to any of these places?
Not that I blame them -- I am sure they are in denial and are desperate and I get that.
I am sad for the parents though, because they're going through a rough time. I wonder if she regrets the blog post now. If it were me, I'd feel awkward (and feel bad) going back to my dr at CHOP after this.
THANK YOU.
Part of me felt like I was missing something.
The mother is a high school English teacher, so I am sure Mia is insured. there has been no discussion that inability to pay is an issue, and this appears to be a doctor's decision, not that of an insurance company.
The story has now changed that it is a doctor, not CHOP, who is denying the transplant. Like I said, it appears they are grasping at straws.
http://latino.foxnews.com/latino/health/2012/01/19/disabled-girl-denied-kidney-transplant-by-doctor-not-hospital/
A friend of mine works atCHOP and has worked with transplants and she said it's not as clear cut as the parents are making it seem. For example, due to her existing health issues she may have a harder time with the anti rejection drugs and if she does reject it she automatically goes to the top of the list for a transplant and then she takes away an organ from another kid who may be a case where the only thing wrong with them is that they need that organ. She could keep bumping other people off the list and it could be a futile effort to begin with.
I totally get where the parent's are coming from and I think the doctor could have used more tact with them with explaining why she is not eligible according to their standards for transplant.
insurance company reimbursements for transplants vary widely, so i wasn't necessarily speaking from a her not being insured. discrimintation happens in transplants, whether that's the case with this issue or not remains to be seen.
I know I don't post very often her but I agree with eSynergy. theres definitely something we aren't hearing here. I understand the mother is upset and frustrated but I highly doubt anything ethically wrong was done by the doctor.
~*~Nestie Bestie with Bemmas221 ~*~
BFP 8/28/07, M/C 11/10/07
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If the parents actually really believe there is an injustice going on, there is no shortage of pediatric medical professionals within 60 miles who they can take their daughter to for a second opinion.
In the article I think the mother just heard the parts she wanted from the doctor. Also her saying they'll cultivate the organ is misinformed.