April 2010 Weddings
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
T&Ps Please
Hey girls,
I'd really appreciate some T&Ps for a family that I am particularly close to from Camp. 3 of her 5 children have FA and they recently went in to get their counts checked. One of the twins is fine, the second twin needs to get a bone marrow biopsy and the 3rd girl (she is 14) has severely low counts and is developing pre-leukemic cells. Basically, she is in bone marrow failure and if she does not get a bone marrow transplant she will get leukemia. She is terrified (as any child would be) but she is also an incredibly STRONG young woman. I'm scared $h*tless about it and just want to drive up to Maine and hug the crap out of her. This family has been through SO MUCH and I just want it to be better.
Bah I hate FA 
Re: T&Ps Please
That's so sad! Is FA hereditary? I guess I'm pretty clueless about the disease except from what you mention on here.
Lifting the family/doctors up in prayer!
Shmel's Blog
Sort of. Basically, BOTH parents have to be a carrier of FA. They also need to be the same complementation group of FA in order for their children to develop FA. Even with all that, each child has only a 25% chance of having FA. That is why it is so rare.
Unfortunately in this family's case the twins were suppose to be bone marrow matched with their older sister. I believe something went wrong during the IVF and instead of having 2 babies without FA and a match for their sister, they BOTH have FA.
Tales From a Kitchen Misfit
<a href="http://www.thenest.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="D
That's complete craziness! I can't imagine what the family is going through!
Shmel's Blog
Post-Wedding Life Blog!
A10 Siggy Challenge: Next Vacation Destination: San Francisco!