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Baby diagnosed w/ Diaphragmatic hernia

She is being rushed to NYC for surgery, once they can stabilize her breathing for transport.  Please keep praying.

ETA: Sorry, typed that so fast.. here's a recap.  My cousin was scheduled for a c-section next week but yesterday they discovered a mass on the baby's lung (CCAM) taking up about half of one side of her chest cavity.  They did an emergency c-section this morning and the baby quickly started having labored breathing.  The surgery is too much for the hospital she is currently at so they are sending her to Columbia once her breathing is stabilized.

 

 

 

 

Kristy

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Re: Baby diagnosed w/ Diaphragmatic hernia

  • Who? Sorry if i missed something...

    My BFFs SIL is dealing with this right now. She is due in a few weeks and will be delivering at Hopkins, I believe.

    Big prayers to whomever you are refering.

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  • Oh no!!!  Definitely sending my thoughts and prayers.  I can't imagine how they all feel right now. :(
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  • Thinking of them! Is she at NY Presbyterian? That hospital is amazing!
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  • imagebrowneyedgrl4282:
    Thinking of them! Is she at NY Presbyterian? That hospital is amazing!

    Yes - she is there now and is in stable condition, breathing only by the help of breathing tubes.  They are waiting for a "team of doctors to work on her" and then they'll do the surgery.. she can go back to Valley once surgery is over and she is stabilized.  My cousin is still here.. I cannot imagine being seperated from my newborn especially in a situation like this..  but I've also heard wonderful things about that hospital and am feeling comfortable that she is there.

    Kristy

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  • Lots and lots and lots of prayers. 
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  • My son was born 4 yrs ago with a Diaphragmatic hernia. It is terrifying but there is lots of hope. It could take days or weeks before the baby is stable to do surgery, I am happy to answer questions if you have any. 
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  • imageMrsV092207:

    imagebrowneyedgrl4282:
    Thinking of them! Is she at NY Presbyterian? That hospital is amazing!

    Yes - she is there now and is in stable condition, breathing only by the help of breathing tubes.  They are waiting for a "team of doctors to work on her" and then they'll do the surgery.. she can go back to Valley once surgery is over and she is stabilized.  My cousin is still here.. I cannot imagine being seperated from my newborn especially in a situation like this..  but I've also heard wonderful things about that hospital and am feeling comfortable that she is there.

    there's no better place for that baby to be.  hope all goes well. 

  • Lots and lots of prayers! My brother and SIL's close friends have a daughter who was born with that. It was a rough road in the beginning, but she is doing so well now! Keep us updated!
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  • imagemonica92603:
    Lots and lots and lots of prayers. 

    Thanks Monica.. my cousin is the one you and I were emailing with..

    Kristy

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  • Praying for the baby and for your cousin too. 
  • And thank you all for the positive stories.... it really does make me feel like this is something she can pull through.. when you don't know anything about a condition you really feel helpless and insecure..

    My mom just texted me that they will not operate until Saturday after monitoring her and then will be at Columbia for the next 4-6 weeks. 

     

    Kristy

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  • I'll be thinking of them!  for what it's worth, maybe mention to your cousin she can leave the hospital early- i don't think her doctors can suggest it to her (because every woman is entitled to a certain amount of time), but she CAN ask to be released at any time. I left after 1 night, I was fine, just ready to be home. So if she's feeling able, tell her to ask her doctor to check her out and see if she can be released early so she can go be with her baby. I can't imagine how hard it must be to be away. 
  • My thoughts are with her and the baby. I work at Valley on Mother Baby let me know if there is anything I can do for your family. 
  • imageMrsV092207:

    imagebrowneyedgrl4282:
    Thinking of them! Is she at NY Presbyterian? That hospital is amazing!

    Yes - she is there now and is in stable condition, breathing only by the help of breathing tubes.  They are waiting for a "team of doctors to work on her" and then they'll do the surgery.. she can go back to Valley once surgery is over and she is stabilized.  My cousin is still here.. I cannot imagine being seperated from my newborn especially in a situation like this..  but I've also heard wonderful things about that hospital and am feeling comfortable that she is there.

    I can't even imagine! Continued thoughts & prayers for your cousin & baby!

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