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Total vent- so enraged at EI system

we were relying on them for assistance with my daughter's hearing aids since I have two daughters and a husband who wear them and my insurance covers nothing.  This is upwards of 15 grand each year not including the cost of molds, batteries and repairs.  The state has a law now where they will pay for them if insurance does not cover but you need to apply.  It is a lenghthy process.  We applied through our service coordinator back in early Dec when A was 2 months old and were told it will take max two months.  I was getting the run around from her service coordinator and I did some calling around of my own and spoke to the woman in Trenton yesterday only to find out that her case was not opened till Feb 3rd and was missing a piece of information that I know the coordinator had.  I was enraged and in tears.  I called our coordinator's manager.  I requested a new coordinator and put everything in writing with dates etc.  I don't know how much longer this will take but I am starting to feel extremely guilty that my daughter does not have her aids yet.  Her therapist does not think it will impede her development at this point but just getting used to them as a baby is difficult the older they get.  I thought I was doing all of the right things this time and unfortunately I am getting screwed by a lazy person in the system.  I hate not having control over these things and I feel like I have to be on top of them all the time, calling etc.  I really feel like the system is failing me right now :(

Lilypie Fourth Birthday tickers Lilypie First Birthday tickers

Re: Total vent- so enraged at EI system

  • sorry not 15 grand each year.  More like 15 grand every three years but still a major amount of money for something that is medically necessary for proper development. 
    Lilypie Fourth Birthday tickers Lilypie First Birthday tickers
  • I'm sorry. It drives me crazy when I've done what I need to do and other people drop the ball. I hope it gets resolved soon.
  • that's terrible and you have every right to be enraged at the system and the coordinator who dropped the ball.

    unfortunately, i find it necessary to always be on top of everything for the kids when it requires a follow up. things get lost, papers get buried, balls get dropped. it's life - but a PITA for everyone.

  • I completely feel for you- you can private message me on FB/email if you need to vent more. HUGS.
  • I was following up.  I also found out I was being lied to.  she told me she sent the missing paperwork three weeks ago and it turns out she didn't send it till yesterday morning. 
    Lilypie Fourth Birthday tickers Lilypie First Birthday tickers
  • imageknittygrl:
    I was following up.  I also found out I was being lied to.  she told me she sent the missing paperwork three weeks ago and it turns out she didn't send it till yesterday morning. 

    i understand - didn't mean to suggest you weren't. i meant that it's ridiculous how much follow up i think is unnecessary, but is required of me anyway.

    glad you documented it

     

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