Married Life
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
people say the weirdest shiiiit.
tonight i volunteered to represent the hemophilia foundation at a tampa bay ray's game. they have a little area where we set up information and then give us a drawing box and people can fill out a form to win an autographed ball.
some people pretty much ignored what was around them (as i had anticipated) but others would ask about hemophilia and look at the materials i brought.
however, there were three people (on separate occasions) that were all "oh, i used to know someone with hemophilia. they died."
and i was all 
Re: people say the weirdest shiiiit.
did they know your son has it?
people have no filter
Im sorry
lucky, i did tell the last two my son has it after they opened their mouths.
it doesn't bother me too much, as i know thats obviously something that happens. it just seemed so...i don't know. strange.
Oh my. They need to learn to think first and speak second.
I'll be honest though, I had a friend who passed away from CF a few years ago. On more than one occasion where someone else has mentioned knowing someone with CF, I have had to hold my tongue from saying something along the lines of "Oh, I knew someone with CF". I never did say it because I realized how it sounded, but when I thought it it was always as a way to relate/empathize with the person I was talking to, not to remind them that it was a fatal disease.
However, the difference between me and the people you're talking about is that I think before I speak.
Not the same thing, but a guy who worked at Cingular told me "you remind me of my ex girlfriend. You smell just like her. She's dead. "
Well. Thanks and give me back my damn phone you freak.
Um, thanks? That's so strange. I kept doing the opposite, when my friend johns mon had breast cancer, I was all "oh sure, yeah, my mom did too". But hers was much more advanced and she died. I felt so frwaking dumb when I told him to tell his mom to brush her hair to help with the mastectomy pain. Hey divkhead, she had chemo too, and she had no hair. Duh. Such anasshole!
Weirdos.
If it makes you feel any better, they probably died of HIV, which is no longer a risk for hemophiliacs.
That's still an odd thing to say, though.
Aw, that sucks.
That being said, unless they didn't know about E, I wouldn't put it as a bad thing necessarily, they were probably empathizing?
Similar to when a breast cancer or a leukemia tent has some information, the people that would care will often say "hey, my (family member/friend) had (disease) and died". (or "my (family member/friend) died of (that disease)). You know, as solidarity, becuase they really want that disease to be eradicated?
I know that that happens a lot when I go on talks/discussions/conferences with a specific disease topic. Everyone can actually empathize more if they've had a close one lose a fight from x disease.
Though I can see why it would sting.
The ***????
Right. I don't see how that could make anyone feel better.
So, you were one of the asshats at the ball game, yes?
I would have followed with yeah all doctors agree 10 out of 10 people die.
What a total freak.