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Ok. I'm starting to officially get scared.

I don't talk about this on here much at all, but I'm worried about my son.

He is almost 19 months and isn't walking or talking. Early Intervention comes in with speech therapy and physical therapy, and he's had a few evaluations.  He's seeing more specialists soon.  I keep hearing, "don't worry... don't worry... we'll let you know when it's time to worry"  but... I am looking at him today and just want to cry. :(  I feel so bad for my little bubs.  It's sinking in that we've got "something" going on... and it's killing me that I don't know WHAT it is and WHYYYY. :(

Hard to feel helpless.  I'm trying so hard to help him, but i'm not seeing improvement.   ...    yet. ?

sigh.

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Re: Ok. I'm starting to officially get scared.

  • Don't panic.  Seriously, do not panic.  My sister didn't talk until she was two years old.  I didn't walk until I was nearly two. 

    Listen to the specialists.  They'll know when it's time to worry. 

     

    ((((((missy))))))

     

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  • You know, there is a Knottie names thatgrrl on Wedding Woes who has gone through this.  You might want to page her for support, from a person who has been there.
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  • sonrisasonrisa member
    Ancient Membership Combo Breaker
    I'm sending you big hugs. You are a great mom. This must be very difficult.
  • I'm sorry :( It sounds like you're being proactive with physical and speech therapists, so you should feel good about that. Is/are there any specialists you could take him to for more testing? Of what I don't know. What does his pedi say?
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  • LHC is right.

    children are ALL different, it's not just something people say, it's actually true. 

    "pudding is the chess of jello"
  • i'm sorry missy, that must be so scary.  but at 19 months?  perhaps they are right not to worry too much at this point. 
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  • You just started these therapies, right? Give it time. And I know it's hard, and goes against a mother's nature, but try to just listen to the specialists about not worrying yet.

    No matter what it takes to get him caught up - he is still that adorable little boy you love so much, and you're being proactive and he will benefit from this.

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  • what LHC said....

    my bf is going through something similar w/her 2 yr. old and she's dealing w/the same emotions and frustrations

    image Normal is getting dressed in clothes that you buy for work and driving through traffic in a car that you are still paying for - in order to get to the job you need to pay for the clothes and the car, and the house you leave vacant all day so you can afford to live in it.- Ellen Goodman
  • It sounds like you're doing everything you can for him.

    S didn't really start talking until he was 3, I have no idea why. And I've heard people rave about speech therapy and how much it's helped. My friend's daughter didn't walk until 2 and therapy helped her a ton. 

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  • sonrisasonrisa member
    Ancient Membership Combo Breaker
    DH didn't walk until well after two either. He thinks it was his atrocious eyesight.  Can he see you at a distance?
  • aww, its hard not to worry, Im sure.

    My nephew didnt speak until he was closer to 2.5 years old. 

    Now, he doesnt shut up, lol. 

  • thank you, everybody!  It is nice to hear that other people just 'started late'.

    Ian has low tone in his legs, so we're working on strengthening them.  It's just getting me worried to see him regress.  He's at the point now where he doesn't even *want* to walk b/c he doesn't like falling down. :(  And speaking?  He's not even saying Mama or Dada :(   He *did* say mama when he was just 9 months old... but not anymore. 

    he does say "ah dah" (all done)   and "gah!" for Cat, Dog, and baby.

    I hear... "gah gah gah gah" all day b/c he's so excited to see his baby sister! lol!! :)

  • Don't panic, you're doing everything you can right now. 

    My SIL is going through something similar with my nephew. He is 3 and only recently started speaking. He has an older sister and it's likely there just wasn't a need for him to speak.  It makes me sad that you said you looked at him and cried bc presumably he's a happy little boy who is none the wiser. He's still the kid everyone loves to death.

    There is a great chance that all of this is going to unfold normally. Kids do things in their own time. And just some more anecdotal evidence, my niece didn't walk until she was almost two. She's a little clumsy, lol, but totally fine. 

  • imageMissyNY:

    I don't talk about this on here much at all, but I'm worried about my son.

    He is almost 19 months and isn't walking or talking. Early Intervention comes in with speech therapy and physical therapy, and he's had a few evaluations.  He's seeing more specialists soon.  I keep hearing, "don't worry... don't worry... we'll let you know when it's time to worry"  but... I am looking at him today and just want to cry. :(  I feel so bad for my little bubs.  It's sinking in that we've got "something" going on... and it's killing me that I don't know WHAT it is and WHYYYY. :(

    Hard to feel helpless.  I'm trying so hard to help him, but i'm not seeing improvement.   ...    yet. ?

    sigh.

    Rachel didn't walk until she was 21 months. Julia is 13 months and not standing.  We have been through the whole EI thing.   At one point in time Rachel had a Phyiscal Therapy, Occuptional Therapy, Speech Therapist, Developmental Therapist and a Music Therapist, ALL AT THE SAME TIME. 

    I can now tell you that Rachel is a genius, okay maybe not a genius but she is way ahead of most 3 year olds.  She knew all her letters and numbers before she was two.  She taught herself phonics from watching SuperWhy.  She is teaching herself to read.  GENIUS  !  !  !  Twy Sentwa ! ! !

    I am not trying to discount your feelings, trust me I was a basketcase at times.  I am just trying to say that some kiddo lag a little bit, it doesn't mean they have a life long problem.

    For the walking, maybe ask your PT about SureSteps.  They aren't for every kid, but they were a miracle for Rachel.

    I have been through this and I am going through it again with Julia, PM me anytime you need to talk to someone who has been there and is there.

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  • wblwbl member

    :(  ((((missy)))

    I can imagine it's really hard not to worry, but it sounds like you are doing everything you can to help him and make sure he's being helped if he needs it.  I think some kids are just later bloomers.  I dated a guy who didn't speak a word until he was 3.  And that dude started medical school at 16. 

     

  • imageMissyNY:

    thank you, everybody!  It is nice to hear that other people just 'started late'.

    Ian has low tone in his legs, so we're working on strengthening them.  It's just getting me worried to see him regress.  He's at the point now where he doesn't even *want* to walk b/c he doesn't like falling down. :(  And speaking?  He's not even saying Mama or Dada :(   He *did* say mama when he was just 9 months old... but not anymore. 

    he does say "ah dah" (all done)   and "gah!" for Cat, Dog, and baby.

    I hear... "gah gah gah gah" all day b/c he's so excited to see his baby sister! lol!! :)

    SureSteps definitely ask your PT and/or Pedi about this.  Rachel when from not being able to walk more than 3 steps to walking all the time within two weeks of getting her SureSteps.  They are a miracle for low tone.

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  • cbwmcbwm member

    (((((missy)))))

    Listen.

    It's okay to be scared. I get where you're at right now. I really do.

    But please, please, please keep this in mind - no matter what comes your way with him, he's still the kid you've known for the last 19 months. Nothing has changed. And the only thing that will change is perhaps a diagnosis of some sort and ways to help him. That doesn't change who he is, or how much you love him or how awesome he is.

     

    I like privacy. A lot.
  • Aww Missy I'm sorry!  I agree to listen to them and give it time.  My niece didn't talk until well after 2 and therapy did wonders.

     

    ((hugs)) 

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  • Big hugs, Missy. You're doing everything you can.

     

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  • Stay strong Missy.  He's got you for his mom, he'll be just fine!!

    (((((hug)))))

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  • Floyd.BFloyd.B member

    I also didn't walk until 20 months.

    I'm sorry Missy - I know this is scary. 

    I just want you to know that it CAN be nothing, so try not to go to that place where mom's typically go when something seems wrong.

    Floyd P. Bamker - can't spell
  • ((((hugs)))) to you. 
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  • imagewanderlust2006:
    imageMissyNY:

    thank you, everybody!  It is nice to hear that other people just 'started late'.

    Ian has low tone in his legs, so we're working on strengthening them.  It's just getting me worried to see him regress.  He's at the point now where he doesn't even *want* to walk b/c he doesn't like falling down. :(  And speaking?  He's not even saying Mama or Dada :(   He *did* say mama when he was just 9 months old... but not anymore. 

    he does say "ah dah" (all done)   and "gah!" for Cat, Dog, and baby.

    I hear... "gah gah gah gah" all day b/c he's so excited to see his baby sister! lol!! :)

    SureSteps definitely ask your PT and/or Pedi about this.  Rachel when from not being able to walk more than 3 steps to walking all the time within two weeks of getting her SureSteps.  They are a miracle for low tone.

    thank you for this link!  His therapist was discussing orthos this morning at his session, but she said he didn't seem to pronate very much... so we're keeping on eye on things.  

    the sure steps look great!  were they $$$?  Did your insurance cover?  The orthos the therapist was mentioning were, like, ... 1k!?  

  • imageFloyd.B:

    I also didn't walk until 20 months.

    I'm sorry Missy - I know this is scary. 

    I just want you to know that it CAN be nothing, so try not to go to that place where mom's typically go when something seems wrong.

    you're right.  you're totally right.  And you're also right that I am not letting myself believe that it's "nothing"  I NEED to work harder on believing that, b/c logically?  I know better than to google and get myself worked up like this.  

    i'm chalking this crazy up to postpartum, too! Stick out tongue I can, right!? lol!

  • sonrisasonrisa member
    Ancient Membership Combo Breaker
    Missy - do kids this age really talk that much? The moms I know talk about their kids speech and all their words, but in practice I hear very little. My almost 18 month baby only uses two words with regularity ("a da" and "sheese"). 
  • Natalie didn't walk until she was 22 months. She just one day got up and roamed around the house. We had test after test done, but she just wanted to do it on her own time.

    Audrey didn't start really talking until she was close to 2.5. She said a handful of words, where her sister had been talking in full sentences at a year.

    Don't worry! 

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  • I think that the cost was around $300, but we had met our deductable for the year so we didn't have to pay anything.   Her SureSteps were fitted on New Year's Eve so we could be sure to get them in before the deductable started over. 

    For Rachel as soon as she started walking her development took a huge spurt.  She wasn't talking much and just one word at 21 months, by her second birthday she had a ton more words and was speaking in sentences. 

    Kiddos are amazing.  You are doing the right thing.  I always tell my husband, "we won't regret doing therapy, but we might regret it if we don't do therapy."

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  • TambcatTambcat member
    50000 Comments Sixth Anniversary Combo Breaker 5 Love Its
    :(  I'm sorry you're dealing with this.
  • The SureSteps are really nice because Rachel never seemed uncomfortable in them and never tried to take them off.  Plus, I would put her in sneakers and fold her socks down over them and you could hardly tell she had them on.  She has long out-grown them but I saved them.  They are sentimental for me.
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  • imagesonrisa:
    Missy - do kids this age really talk that much? The moms I know talk about their kids speech and all their words, but in practice I hear very little. My almost 18 month baby only uses two words with regularity ("a da" and "sheese"). 

     

    not even mama or dada?

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