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MommyLiberty5013
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Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Please come in if you have MS...
Hi. I have many, many symptoms of MS and I am seeing my PCP tomorrow and have an appointment scheduled in October with a neurologist. Yes, I have done some poking around online. I have a lot of numbness, tingling, blurred vision, weakness, twitching, burning, and some other more private symptoms.
I am 30.
Can anyone share their diagnosis history and whether or not is went undected and for how long?
Thanks.
Re: Please come in if you have MS...
I hope your appt went well and that the doctors can help you and give you answers!
Good luck
Sorry to hear. I went through testing - including 6 MRIs within a matter of 2 months as there was, what they thought, spinal lesions. So, we had to check all other areas of the spine as well as the brain. MS was eventually ruled out and my neurosurgeon was able to make a proper diagnosis.
Best of luck to you!
Saw my PCP today. He is referring me to a neurologist, which I assumed would happen. He was thinking MS too based on my history and symptoms. I have cried a bunch today.
Anyway, I refuse to go crazy and I'm not going to focus on it - my neuro appointment is the 17th.
Hugs. What a scary thing to be going through.
I don't have MS, but I do have a blog to recommend. http://www.elanaspantry.com/
She is an amazing cook, who also shares her journey with MS on occasion. When she does share, it is very inspirational. You might have to search around to find her posts on MS, but it would be worth it.
I don't have MS either but I'll have to agree with Julie's response about ElanasPantry. Food plays such a big role in our health
You might want to try an elimination diet to see if there are foods that make your condition worse. I did something like that earlier this year and found that MSG causes burning tingling sensations on the back of my neck and hands. It also makes me feel hot suddenly. Some people are more sensitive to it than others and are wrongly diagnosed with MS when they're really sensitive to MSG. Unfortunately MSG is a hidden food additive that is used a lot. MSG is a neurotoxin which is why it affected my nervous system.
Aspertame or artificial sweeteners also give certain people symptoms of MS. There is a documentary called "Sweet Poison" and in part of the documentary they interviewed a woman who was diagnosed with MS and reversed the diagnosis after she stopped consuming artificial sweeteners.
You lose nothing by trying an elimination even if your doctor tells you that certain foods can't possible be contributing to your symptoms.
Best of luck to you and I hope you feel better soon.
This is very helpful. I do drink some diet sodas. I will cut them anyway since I kow they aren't good.
Do you ever just have a gut feeling about something, like women's intuition? This is how I feel. Not paranoid, just ready to hear that I have it - like I know somehow.
Well I hope you don't have it and it is something else with a different treatment schedule. MS can be very scary. I was told I had it when I was 18 and like you was ready to hear that i just had it after my 4th MRI and 5 doctor visits. After that, all my college research papers/projects for the next 5 years was on this ever changing disease. But after I spoke with other family members who have MS, knew women and men who had died from it, I am glad it ended up being something else. Bad thing about MS is that there are no two people alike with the same symptoms.
Another main reason why it is so hard to diagnose. You can have spinal lesions and brain lesions that point right to MS (my case) but the spots in which the lesions are do not correctalte to certain symptoms, MS can be ruled out. There are so many things now days it can be. For your bodies sake, I hope you don't have it. My father in law is going down hill prettty fast. There are so many new treatments out there, but it is if you can handle them. Some made my father in law so sick he didn't take them for months, others were ok, others are expieremntal. It is up to you and your doc what treatments to do if you end up having the disease, but also your family seeing how in some cases they have to provide you the medicine. I wish you all the luck and hope you a good diagnosis from the Neuro.
I've been screened for it, but they've never screened my cervical spine and frankly I think they need to. My coordination is only getting worse.
Go to as many doctors as you need to. I stayed with one far too long who just didn't take me seriously. I know a number of folks with MS and they have careers, families, a social life, and the usual range of joy and sorrow.
There's a terrific online support group at dailystrength dot org. Sometimes, just hearing from people that have been through it already is really helpful - that XYZ test really isn't painful, that there's a great way to cope with Symptom A, that Symptom B is universally a pain in the rear, etc.
I too have been screened a couple times for this. I have a lot of numbness, tingling, and a few other symptoms. I just had another MRI 3 weeks ago and a full blood workup. I have a severe B12 deficiency (explains the numbness) and a benign angioma in the brain (also explains some of my other symptoms).
So try not to worry too much for the possible dx. I was absoluetly worried sick and made me feel worst. Luckily my dx is manageable with shots to get my levels were they need to be and I will get a new MRI every year for the angioma.
Good Luck, and I pray that you do not have MS.