Philadelphia Nesties
erbur78
member
Dear Community,
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
Our tech team has launched updates to The Nest today. As a result of these updates, members of the Nest Community will need to change their password in order to continue participating in the community. In addition, The Nest community member's avatars will be replaced with generic default avatars. If you wish to revert to your original avatar, you will need to re-upload it via The Nest.
If you have questions about this, please email help@theknot.com.
Thank you.
Note: This only affects The Nest's community members and will not affect members on The Bump or The Knot.
philly gal
I saw your post: "B&B for a friend's husband who went in for what they thought would be a "minor" brain surgery (I know... that's never minor) which turned out unexpectedly and he is still in a brain trauma center now, two and a half months later!"
I'm very sorry about your friend's husband. I hope you don't mind me asking, but does he have TBI as a result of his surgery? I am a ~10 yr brain tumor survivor and very involved in the brain tumor community. I'm happy to lend resources and/or contacts if it can be of assistance to your friend.
Re: philly gal
I didn't know that! Wow!!
Im assuming tbi is traumatic brain injury. Am I right?? He was in a medically induced coma for over two weeks and then the weaned him off the meds but he was still comatose. He is currently learning life skills. They took out his trach out and he's eating solids now. They are working on walking and standing but walking is a bit off. He seems to have his memory but can't always remember the words he wants to use.
Probably more than you were asking for but I'm not sure if that answers your question. We are all so proud of him but its sad seeing him have to relearn everything. He has three young kids too :-(
I know I'm butting in, but my first job out of college was at Remed, which is a brain injury rehab provider. They are wonderful and they should be able to provide you with direction and support.
http://www.remed.com/
I hope your friend has been seeking support for herself. Being a caregiver to someone with TBI can be very isolating. It is very important for the caregiver to take care of themselves and know they are not alone. I looked up some caregiver support networks in Philadelphia. TBI Support Networks Philadelphia. Also, I'm sure the hospital he's in will have resources available for the whole family. I would encourage your friend to take advantage of these resources. There are many people who have been through a similar experience and want to share/offer support/give hope.
Wishing your friends the very best.
Oh, and I also recommend this book to others: I Had Brain Surgery, What's Your Excuse. The author had a very successful writing career for many years and was then diagnosed with a brain tumor. She is very honest in her words, and humorous (but gentle) in her descriptions. She also encountered aphasia after her surgery, which was especially challenging for her as a writer. She had a successful recovery.
The book is a mix of writing and illustrations.
Wow! You've overcome so much. I can barely walk without walking into walls and like that book says.... I have no excuse! I will certainly pass these things on to her. She's been keeping a journal and a caring bridge site which I think helps her a bit but none of us can really know what it's like.
I am pleased to report that we raised over $12,500!!!! It was such a great turn out!