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oh my god
The pediatrician just called and he already has the blood test results back and there is one thing he tested I think L Phosphate? and the levels are supposed to be 150 and Ethan's are 4000 and that indicates a rare bone disease and that's why his head is so big and why his soft spot isn't closing and why he's so small because his bones aren't growing? I don't know but he sounded very concerned and asked me to go to the hospital NOW to get an xray done of his skull, wrists, and legs and he said that depending on what the xrays show we might have to go to Children's Hospital in Vancouver.
If there is something wrong with my son I am going to beat those other doctors to bloody pulps. I can't believe this. I'm' shaking. My mom is coming to get me so we can go right now. He was very adamant that it had to be NOW.
Re: oh my god
hugs... I'm so sorry that you are going through this. I can't imagine how scary and frustrating this must be for you.
Keeping you and Ethan in my thoughts
Wow.....I am so sorry that you have to deal with this but thankfully one of the doctors decided to take action! I will gladly hold one of the other doctors for you if you need it.
Oh, wow, that is so scary! So glad that you're finally getting somewhere, though, and able to take action. Hoping for the best...
Oh no. Hang in there. See what the xrays show.
I'm so sorry you're going through this. And yeah, I'd be furious at the other doctors, too.
If you do come to Vancouver, there are lots of us here to support you. DD and I would be happy to meet you for playdates at our favourite hangouts between appointments. You're not alone in this.
((((HUGS))))
Oh my gosh!!! I am so sorry. I hope everything is okay.
oh my goodness, Lisah! I am so sorry you are having to deal with this=( I just said a prayer for you both.
::hugs::
I am so sorry you and Ethan are going through this. Just try to breathe, deep breaths, and stay calm until you KNOW if there is something definite to worry about. Thankfully this doctor seems on top of things and is looking into everything.
And if you do come to Vancouver, please let me know. I am here and more than happy to help with anything I can. email me if you need anything at all nikki at fit4two dot ca
((((HUGS))))
People need to put more faith in a mother's instincts.
((((HUGS))))
Thank everyone, you guys are great.
We're back, and it went pretty well. He paperwork was marked urgent so we were front of the line when we arrived and we were in right away. We were in and out before my dad had managed to find parking (he was circling the hospital over and over again). The technician didn't know how to do the tests so she had to call in the radiologist to tell her what to do and she apologized and said that it was because this test was quite uncommon, she had never had it come up before
I have no idea what to make of that, but trying not to be too concerned. I called the pediatrician when we got home to see what our next steps are but he was out of the office so hopefully we hear back soon.
Sigh
I just have so many questions... dwarfism? Bone cancer? Brittle bones? A hormonal condition? The doctor didn't tell me what this condition might be, what he was specifically looking for, so I have no idea what to even prepare myself for. If that's even what it is.
It just generally all around sucks, but I'm glad that we are finally being taken seriously and any problems will be discovered. And hopefully fixed.
I am glad you were seen right away. It sounds like you will be getting answers really soon! I hope that it's something along the lines of a thyroid issue. I know that it's still not the best, but at least it's a treatable thing.
::hugs again:::
We're in Germany right now so I haven't been online much and am catching up. I can't imagine how frightening this has all been for you. If you do need to go to Children's, let me know if there's anything I can do to help, even if it is just to meet up for a playdate.
Hugs to you. You'll be in my thoughts and prayers.
Thank goodness this doctor seems to be taking some action.
We're praying for you. Keep us posted as much as you can.
Our answered prayer, Emilie Helen
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keep us updated on how ethan is doing.
Thankfully you have finally got a doctor who is on the ball; I can only imagine the anxiety you feel but we are all thinking of you and sending positive vibes to you.
What a scary stressful day. I hope that they get back to you soon with some more information about what they found from the xrays.
I'll be thinking about you and your little guy these next few days. Keep us posted on how everything is going when you get the chance. Sending you and Ethan tons of healthy, positive vibes.
Oh wow, Lisah...
What an intense time you are going through. Like the girls said, hang tight, stay positive, and thank God for your maternal instincts because those other doctors are going to get a serious lashing for missing this. This was doctor #6, no? Makes me worry about what our doctors truly know.
You're in the right place now - the hospital is the best place for the answers, and I'm glad the pediatrician has started these tests (though I'm sure they're worrisome for you and your DH). Sending lots of love and hugs to you and Ethan.