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I need lots of T&Ps

When I went for my NT scan, the neck measurements were normal, so I thought my risk of downs and other trisomies would come back fine. Boy was I wrong.

My b/w came back, and I now have a 1/25 risk for trisomy 13 or 18 (apparently they didn't differentiate) which is a death sentence for my baby (babies don't usually live past a year with one and a day with the other). I've spent the past 2 days crying my eyes out not understanding how this could happen after things finally seemed to be going well for us, especially with my reasonably young age.

I have to go for an level 2 ultrasound and amnio on May 31st to find out whether I'm the 1 or one of the 24. It is killing me waiting that long, but according to my ob, peri's in the area won't do an amnio until 16 weeks. Amnio also carries a risk of miscarriage so I am nervous about the actual procedure too. There is some test that can bring us preliminary results in 48 hours, but idk if the doctor will do it (I've been too upset to call thus far). If not, I have to wait another 10-14 days after the amnio to even find out the results. Then I'd have to make a decision about termination if it doesn't come back in our favor, something I never thought I'd have to do.

I know the odds are 96% that the baby will be ok, but I'm scared to death that I've fallen in love with this baby only to lose it. I am literally just going through the motions of the day trying to make it until the 31st. Please keep us in your thoughts and prayers.

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Re: I need lots of T&Ps

  • Riss91Riss91 member
    Fifth Anniversary
    Oh my gosh Linda, I am so sorry that is so scary! I will be praying for you all.
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  • I am so sorry that you have to go through this. My thoughts are with you that all will turn out great.
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  • Oh Linda, I'm so sorry. Sending you lots and lots of T&Ps and love. xo
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  • ELF4321ELF4321 member
    Tenth Anniversary Combo Breaker
    Oh, honey, I'm so sorry you have to go through all of this, after everything you've already been through to get pregnant.  I know it's hard to try to stay positive, esp. when you have to wait so long to find out for sure --   Try to distract yourself with other stuff as much as you can until you know something for sure.  96%.  Those are really good odds honey.  You will be in my thoughts and prayers.  If you want to talk, PM me or message me on FB.  I'm around.

    Always missing my Mommy (1954-2010) and Daddy (1943-2012)
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  • sending you lots and lots of T&Ps!!
  • sending you all I have!!!  Hoping for the best!
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  • Keep your hope up.did you have 1 blood test or 2?  I would think one one so far.

    This is the reason my doctors office will not give you true number results until after the second round of blood work. It changes. They will give you a high% or a low% from the first test. Try to remain calm I know it seems impossible. However they are testing for markers of risk not facts. Keep your self positive and wait until your amnio. 

    Lot's of HUGS and positive vibes. 

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  • I'm so sorry you are going through this. Sending tons of vibes and thoughts your way. Keep positive and try to stay busy and distracted. Easier said than done I know.
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  • rblucyrblucy member
    Sixth Anniversary 1000 Comments Combo Breaker
    I'm so sorry!  Lots of T&Ps for you and LO!
  • I'm so sorry, Linda. (((hugs))) and thoughts and prayers for you guys.
  • I'm so sorry to hear this news.  I'm sending tons of thoughts and prayers to you
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  • Stay positive my friend.  Lots of love, hugs and positive thoughts.  I know it's extremely hard, but please, try not to focus on the negative.  Like E said, 96% are great chances.  Focus on the good my friend.  We're all here for you.  ((((HUGS & LOVE))))
  • I'm so sorry your going through this. Tons of hugs, vibes, and prayers coming your way. XOXO
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  • L - I am so sorry.  I am sending you tons and tons of thoughts and prayers.  (((hugs)))
  • so sorry, thinking of you!
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  • I am so so sorry. I will pray for you and keep you in my thoughts.
  • I got chills reading your post.  Lots of T&P for you and baby.  I truly hope everything turns out ok.  We're here for you xoxo

  • Oh gosh Linda, I'm so sorry and I have you and your baby in my thoughts.
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  • Linda i am praying for you and your little one.  hugs.  if you need to talk or gtg i am available.
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  • T&P for you and your DH! I'm sooo sorry you are going through this. I'll be thinking about you, and your little one.
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  • ssagessage member
    Sixth Anniversary 500 Comments

    Praying for all three of you!  Lots of love and hugs to you. 

    I did not have an amnio (I opted to not have it even though my NT results were not out of the park) but a very good friend of mine did and she said it was nothing to worry about (and I too was worried for the same reasons as you) and said that it was very easy and not uncomfortable.

     

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  • Tons of T&P's for you!! xoxox <3
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  • Huge hugs!!! I'll be thinking of your guys. Tons of prayers and hoping everything turns out ok!
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  • Oh my gosh I'm so sorry. Try to stay as positive as you can. Im thinking of you and sending you hugs!
  • im so sorry love... t&p's to you! im sure everything is going to be alright! ::hugs::
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  • You have my thoughts and prayers. I hope everything is alright.
  • Many thoughts and prayers your way. I'm hoping your reading was a false positive. Please keep us posted. <3
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  • linda i am praying so hard for you!!! this broke my heart!
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  • Linda, t and P are with you and your family.  Be optimisitic!  As orthers have said, 96% are great odds!  Also, remember these are screening tests, not diagnostic tests.  The whole point of a screening test is to have a ton of false positives to try to catch the 1 that is a real positive.   Also, don't rush the test results, honey. I know you are anxious but go by the tried and true tests, not something that could get you less accurate results faster.  If there is a chromosomal abnormality, a week wouldn't change anything.  
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