Getting Pregnant
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Partial molar pregnancy? (obv loss mentioned)

I found out today that the pathology from my d&c came back and it is a suspected partial molar pregnancy so now I have to TTA much longer than the one cycle we were told and I need weekly and then monthly blood work to make sure none of the 'mole' is left in my body. Everything online says that with a molar/partial molar I have to TTA for 6 months to 12 months. Does anyone have any experience or know anyone who experienced this? This has thrown me into a tailspin...
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First date July 31, 1999    Married January 28, 2009 
TTC#1 July 2010 PCOS dx April 2011 
DS born: February 21, 2012

TTC#2 June 2013 MMC Sept 2013 (partial molar), CP 02/2014 DS2 born: December 5, 2014
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Re: Partial molar pregnancy? (obv loss mentioned)

  • I'm so sorry.

    I'm not terribly familiar with molar pg, but from what I have heard you typically need to wait about a year. Have you had your follow-up appt. for the D&C yet? Definitely questions to ask your doctor.

    ((Hugs))

    Married August 2009

    3 years. 5 losses.

    Our rainbow baby boy born 11.16.15

  • I'm very sorry. I don't have any experience with them, but I can imagine the news is very upsetting.
                                       image              image
    "I DO NOT love that you think so many things revolve around you.  I know you're bitter.  I get it.  But I'm over your feelings." The best person on the internet ever!
  • I don't have any experience but from what I understand 6-12 months is the usual waiting time to make sure it's completely out of your body otherwise there can be major complications.

    I'm sorry you're dealing with this and hope you can get some answers soon.
    image

    TTC since August 2011
    Cycle 8,9,10 - 50mg Clomid - BFN
    Cycle 11, 100 mg Clomid & IUI#1- BFP 2/23/13 - m/c 4/2/13 @ 9w2d
    Cycle 13, 100 mg Clomid & IUI#2 - BFP 6/27/13 - CP
    Met with an awesome new RE in September 2013 new plan: 5mg Femera & IUI #3
    Surprise Natural BFP 9/9/13 - Welcomed our baby boy 5/25/14

    TTC Buddies with *noelcallum* - Congratulations!
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  • I'm so sorry about the bad news. There was someone who posted somewhat regularly who did have one, but I haven't seen her around in quite some time. Maybe rockstarpups? Does that ring a bell for anyone else?
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  • I'm so sorry. I have no experience with it, but I hope that you get answers soon.
    image

    TTC #1 since 9/12
  • Someone on GP had a molar pregnancy and bucked the system and ttc right away and got pregnant. I can't remember who that was or how it worked out. I just remember thinking that it wasn't a very good idea since molar pregnancies are kind of a big deal. I hope you get it figured out.
    Thanks to our wonderful RE our family is complete!
    DS #1 10.12.12
    DS #2 10.24.14

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    image
  • Omg I'm so sorry. I've never heard of this before but that's just awful. I'm so sorry about everything and that now you're supposed to wait even longer :-(

    imageimageimage
           Me: All Normal DH: .5% Morph
    Cycles 1-14 (Natural) all BFN
                                  Starting IUI#1 procedures Nov '13
                          IUI Cxl'd due to surprise natural BFP 11/1/13
            Calvin born on June 19th, 2014 via emergency c-section at 3lbs7oz
         
  • I am really sorry. I've heard the year thing too, but don't really know anything about it.

    I'm sorry.
    IUI - BFP! Baby boy born still - August 2012
    IVF - BFP - miscarriage June 2013
    FET - BFN
    FET - BFN
    Switched clinics
    IVF with PGD - three embryos created, all healthy - July 2014
    FET - transferred two embryos (boy and girl) - Nov 2014 - BFP!
    Baby Boy born July 2015

  • I'm sorry. I hope you get some answers soon. I'll be thinking of you. ((Hugs))

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  • spin25 said:
    I'm so sorry about the bad news. There was someone who posted somewhat regularly who did have one, but I haven't seen her around in quite some time. Maybe rockstarpups? Does that ring a bell for anyone else?
    Bingo! That's who I was thinking of, but I haven't seen her on here since she had her kid. :(
  • I have no experience with this but I am so sorry. ((Hugs))

    Daisypath Anniversary tickers

    TTC #1 since July 2012

    Cycles 1-9: BFN
    Cycle 10: Surprise BFP on 10/17/2013!
    EDD: June 25, 2014
    Baby Girl born via induction June 26, 2014

    My TTC Journey Blog

  • I'm so sorry you have to go through this.  ((hugs))

    One of the girls in my IF support group had a molar pregnancy in August.  She, too, just found out that's what happened and is going through what you're going through.  Her doc said she has to get blood work weekly to make sure her HCG levels continue to go down confirming they got everything with her D&Cs.  He also said that once they get to 0 or <1, they'll continue blood work weekly to make sure they stay down.  She said they just have to take a few months off TTC.  Of course, though, if her HCG levels don't continue to lower, there are a lot more drastic things that have to happen to make sure the "mole" is gone.  In those instances, it's usually 12 months TTA because of the measures they have to go through to get the "mole" out of there.

    FX and many prayers that your HCG levels will continue to lower and that you'll heal well and easily.
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    * After 22 months and 2 failed IUIs, we finally got our BFP *
    DS delivered naturally at 41w6d on 4/18/14
    * TTC #2  March 2015 *

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  • I'm so sorry about the news. I don't know anything about partial molar pg but my heart goes out to you

    imageMags's book recommendations, liked quotes, book clubs, book trivia, book lists (read shelf)
     
    TTC 19 months ~Started RE in March 2014~
    DH was not ready for IUI so we waited
    ~Started acupuncture in  May 2014~

    ~~
    BFP 7/6/14~~~EDD 3/14/15~~It's a girl!!~~
  • I have no advice.  I'm sorry you are going through this.
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    TTC Since January 2011 - We have bad sperm 
    February 2013: IUI #1 = BFN 
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  • Oh dear...I'm so sorry :/

    I've never even heard of this type of thing but I'm sorry you have to go through this....
  • I'm so sorry about your news, I don't have any experience to share, but I'm thinking of you.
    DX: 6/2012 PCOS  TTC: 6/2013  BFP: 9/6/2013  Attempt Natural m/c: 10/29/2013 D&C: 2/20/2014
    BFP 2: 7/7/2014 Beta 7/8: 115, Beta 7/12: 638, Beta 7/16: 3793, Beta 7/21: 21,625

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  • No advice.  Just hugs to you, and hope things go smoothly.
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  • I have no experience or advice to offer, but wanted to add my sympathy to all the other ladies. My heart goes out to you. I hope you get further answers from your doctor soon and are able to start trying again in a few more months.
    imageimage
    Daisypath Anniversary tickers
    TTC since July 2012
    BFP #1: 11/9/13; spontaneous m/c at 6w2d, 11/25/13
    BFP #2: 12/31/13. B/w 12/31: betas >1000, progesterone 13.6; B/w 1/2: betas 3065, progesterone 10.2
    B/w 1/8: betas 17,345, progesterone 25.6
    Progesterone suppositories started 1/2. Please stick, baby!!
    Fiona Elise born 9/9/14 - welcome beautiful girl!
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  • ((hugs))  I'm so sorry. 
    image
    TTC 24 months, IUI #3 BFP 6/4/14 Beta 6/5 58, 6/9 508, 6/11 1227 TWINS! EDD 2/15/15
    With heavy hearts, we said goodbye to our precious angels on 8/12 at 13 weeks 2 days.
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    IVF #1 Lup/Brav/Meno, ER 11/28 10R/10F, ET "Rudolph" 4AA embryo 12/3, 7 frosties.
    BFP! Betas: 12/12 225, 12/15 706, 12/17 1512. EDD 8.21.15
    12/29 hb 120. 1/5 perfect, GRAD DAY! 1/15 perfect at OB. NT 2/6 PERFECT, HB 158!

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  • I have no experience or advice, but I'm sorry you're going through this. FX you get some answers quickly. (((hugs)))
    imageimage
  • I'm so sorry.
  • Thanks for all your wishes ladies... I'm doing okay, just really surprised by the turn of events.  I had a consult with my doc over the phone yesterday, and all she said was I had to be 100% religious in not getting pregnant right now but didn't say how long. 

    What I know about it is that if my HCG does not go down or goes up, I need to be treated with mild chemo  because it can cause some disease (I don't remember the name) and the mole could spread and could become malignant. 

    I POAS this weekend to see if there is still HCG in my system (which there is, faint BFP), so I know my results this week will come back with some amount, but I'm hoping since my bleeding has stopped that its a good sign that my levels are down.

    As for follow-up, I haven't been for my post-d&c appointment because I was supposed to see my family doctor if I had one.  I will probably just book in with gyn now.  I also have a nurse who will be following my case and blood work who I will be contacting me to set up an appointment. 

    This thing is never ending...I started spotting over two months ago, and spotted/bled on and off until this week and now that it's stopped - this.  Ugh.

    image
    First date July 31, 1999    Married January 28, 2009 
    TTC#1 July 2010 PCOS dx April 2011 
    DS born: February 21, 2012

    TTC#2 June 2013 MMC Sept 2013 (partial molar), CP 02/2014 DS2 born: December 5, 2014
  • Oh Lindsay I'm sorry. Two months and painful reminders sounds terrible. I'm sorry I have no words of advice except that you can do this. One year of waiting is better than complications and we'll be here if u need us to cheer you on. Stay strong friend and good luck.
    Married 05/05/2007, Off BCP Dec 2007
    2 failed Clomid cycles in 2011.
    RE in October 2012: IUI # 12&3 with meds:  BFNs 12/12-2/13
    IVF cycle: ER: 9/18/13, Lu came back to snuggle in: 9/23/13, EDD: 6/11/13

    ~My Bitter Bitches Be the Best~

  • I'm so sorry.  No experience, but I hope your HCG levels go down.

    TTC since 1/13  DX:PCOS 5/13 (long, anovulatory cycles)
    Clomid 50mg 9/13 = BFP! EDD 6/7/14 M/C 5w6d Found 11/4/13
    1/14 PCOS / Gluten Free Diet to hopefully regulate my system. 
    Chemical Pregnancy 03/14
    Surprise BFP 6/14, Beta #1: 126 Beta #2: 340  Stick baby, stick! EDD 2/17/15
    Riley Elaine born 2/16/15

    TTC 2.0   6/15 
    Chemical Pregnancy 9/15 
    Chemical Pregnancy 6/16
    BFP 9/16  EDD 6/3/17
    Beta #1: 145 Beta #2: 376 Beta #3: 2,225 Beta #4: 4,548
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  • I have no experience or advice to offer, but wanted to add my sympathy to all the other ladies. My heart goes out to you. I hope you get further answers from your doctor soon and are able to start trying again in a few more months.
    ^^^She said it better than I could have!
  • I'm so sorry you're going through this. I can't imagine how difficult the last two months have been for you, and my heart just breaks for you that it is being drawn out. :(

    image

    "You know you're in love when you don't want to fall asleep because reality is finally better than your dreams." - Dr. Seuss

    TTC #1 August 2014. BFP 9/26! EDD 6/9/15
    Baby A born 6/17/2015
  • Hi. First I am so sorry about your loss. I was diagnosed with a partial molar pregnancy after a D&C in Jan 2012. The typical treatment for a PMP is D&C and bloodwork following HCG to zero. The timeline for TTC again is up for debate, PMP is not very common and therefore not much research has been done. General rule of thumb is to wait 6-12 months to get pregnant again, doctors like to wait until HCG has been at zero for some time as HCG is the only marker for cancer (very rare, less than 5%)

    In my case, it took about 3 months after my D&C for HCG to go to zero. Then I had an anovulatory cycle, and then I was back to normal. I didn't want to wait 12 months because I was 34 and already had 2 m/c. My OB was okay with not waiting it just meant more ultrasounds & bloodwork to make sure it was a viable pregnancy and not molar tissue. We happened to get pregnant the first cycle (5-6 months after my D&C). I never expected that, and I was scared, but it was okay in the end - I had a perfectly normal pregnancy and had a baby girl in Feb 2013.

    My advice is to do some reading and talk to your doctor about what you want. They tend to give the "textbook" answer when that isn't the best answer for everyone. The wait time was worse than the miscarriage for me, it was a devastating diagnosis. But ultimately it was okay, and it will be okay for you too. Many, many, many women go on to have normal pregnancies after a partial molar pregnancy. Remember the statistics are in your favor.

    Sending you lots of healing thoughts!
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  • I have no advice but just wanted to say that I'm so sorry that you're having to go through this.
    image

    TTC since March 2012 w/irregular and anovulatory cycles.  
    Moved to an RE October 2013  HSG- All clear , S/A- Normal , Bloodwork -Normal
    Uterine polyp found-  Hysteroscopy and D&C 12/6/13  DX w/complex endometrial hyperplasia
    Endometrial Biopsy 3/21/14 - Hyperplasia still present  Endometrial Biopsy #2 6/24/14 - All clear!
    IUI #1  w/stims and trigger - Started stims 7/7/14 - IUI 7/24/14 = BFP 8/7/14
    Beta #1 8/8 - 47  Beta#2 -137  Beta#3 - 96 Beta#4 -287 Beta#5 -519 Beta#6 121 = early miscarriage 5w4d
    Nestie Besties with Nfp147 
  • I'm really sorry to hear this.
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